ME/CFS Actions – Sign The Petition

05/01/2012

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When I was bedridden with ME/CFS, I was struggling just to do what I could to help myself.  The amount of energy I had to reach out to other ME/CFS patients was limited.  And at the time, the internet was in it’s infancy in terms of organizational communication.  For ME/CFS sufferers today, the World Wide Web is a blessing.  Even if you’re house bound, there is a wide selection of organizations working to solve the puzzle of ME/CFS and to support patients and their caregivers.

Someone recently sent me a link to a petition hosted on Change.org which sends a message to the CDC to reevaluate their ME/CFS research and to step up their efforts.  It is supported by many regional ME/CFS groups as well as individual researchers.  Please check it out and sign it today.  And send the link along to your other ME/CFS groups as well as friends and family.  This is something we can all DO.

Will a petition change anything?  There are no guarantees.  But we’ve all witnessed what can happen when people combine their efforts for a cause.  Do you know of other petitions or ME/CFS efforts that we can lend our support to?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha
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Funding for Research – Vote Today and Tomorrow

11/21/2011

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© 2011 TSM
When I was sick with ME/CFS, funding for research was non-existent.  The medical and scientific communities were in denial about ME/CFS being a real disease. Today, there are many research teams following credible leads that may result in successful treatments and possibly cures for some of us in the ME/CFS wastebasket.  Yes, it’s a small fraction of the funds that other diseases receive for research but it’s better than it was.

Chase Community Giving is currently running a contest to determine how they will award up to 3 million dollars to non-profits.  They are asking for people to vote for their favorites.  The voting ends on November 22nd – Tomorrow.  Several ME/CFS organizations are competitive.  Each person gets 10 votes so you can load them up on ME/CFS groups.

Here’s a link to check out Chase Community Giving’s Facebook page.  http://apps.facebook.com/chasecommunitygiving/?ref=ts

Here’s a link for who and how to vote for the ME/CFS groups that are participating.
http://www.facebook.com/notes/xmrv-global-action/how-to-vote-in-the-chase-community-giving-contest/10150398918266797

As of now, The New Jersey CFS Association (http://www.njcfsa.org/) and The Enterovirus Foundation (http://enterovirusfoundation.org/) are in the running.

Please login to Facebook and help to get some funding for ME/CFS research and support groups.  A small grant can make or break these non-profits.  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha
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