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© 2002 Nature Publishing Group Marbán, E.
We all understand that the very definition of ME/CFS means that we don’t all have the same disease – just the same label.  We’ve been culled into a symptomatic description of a syndrome that includes many disease possibilities.  No one has the answer that will cure all of us no matter how much we wish it were true.  With that disclaimer out of the way, I’m going to pull out my soap box and write about my version of ME/CFS and what I think was the key to my full recovery.  My reason for doing this is that I feel strongly that some percentage of those labeled with ME/CFS or Fibromialgia have what I had.  If this helps just one person recover, I’m thrilled.

Ion Channelopathy – As part of my eight step protocol I drank an 8oz can of V-8 vegetable juice everyday.  My intention was to add salt to my diet so that my chronic low blood pressure would rise to a more normal level (so please don’t start chugging salt as it can be dangerous).  I was not aware at the time that I was also providing my metabolism with a liquid Ion Cocktail - full of high dose, easily available ions – specifically sodium, chloride, potassium and calcium (the calcium was taken as a supplement at the same time).  If you feel that this may apply to you, you should discuss it with your medical practitioner before undertaking any course of treatment.  Under the supervision of a medical doctor, you can determine any contraindications and regularly monitor your blood pressure.

I wrote up a full description of my thoughts on this for a later edition of my book.  In case you have an earlier version, read about Ion Channelopathy under Further Lessons.

Have you had any experience with ion therapy?  Did it help you?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

 
 
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© 2011 TSM
When I was sick with ME/CFS, funding for research was non-existent.  The medical and scientific communities were in denial about ME/CFS being a real disease. Today, there are many research teams following credible leads that may result in successful treatments and possibly cures for some of us in the ME/CFS wastebasket.  Yes, it’s a small fraction of the funds that other diseases receive for research but it’s better than it was.

Chase Community Giving is currently running a contest to determine how they will award up to 3 million dollars to non-profits.  They are asking for people to vote for their favorites.  The voting ends on November 22nd – Tomorrow.  Several ME/CFS organizations are competitive.  Each person gets 10 votes so you can load them up on ME/CFS groups.

Here’s a link to check out Chase Community Giving’s Facebook page. 
http://apps.facebook.com/chasecommunitygiving/?ref=ts

Here’s a link for who and how to vote for the ME/CFS groups that are participating.
http://www.facebook.com/notes/xmrv-global-action/how-to-vote-in-the-chase-community-giving-contest/10150398918266797

As of now, The New Jersey CFS Association (http://www.njcfsa.org/) and The Enterovirus Foundation (http://enterovirusfoundation.org/) are in the running.

Please login to Facebook and help to get some funding for ME/CFS research and support groups.  A small grant can make or break these non-profits.  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha