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© 2011 TSM
My apologies for missing my blog last Tuesday but even my hardened 11th grade French teacher would have given me a bye week.  My son had surgery which hospitalized him for six days followed by a readmission due to complications.  During the many days I spent with him wading thru the copious obstacles of our medical system, I noticed all the families who were also spending their holidays in the hospital.  I thought often about how I coped with holidays back in my ME/CFS days.

Basically, I had to abandon all visions of ‘the ideal’ holiday, whatever that meant.  While I was still riding the rollercoaster of denial, my holidays were horrendous push/crash cycles.  Mostly crash.  After I started following the protocol, it was an anguished series of choices to try to stay within my known limits.  Whatever success I had was tinged with a dose of guilt and a tad of anger at the medical system and its failure to unravel the mystery of ME/CFS.  But my holidays did get better as I came to understand my version of ME/CFS and what worked or didn’t.

My son came home last night and we are hopeful that he’s home to stay.  How did you cope with your holidays?  Were you able to manage some balance in your energy expenditure or was it push/crash?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha
 


Comments

Tim
12/28/2011 11:26pm

Dear Martha, I wish your son a return to wellness :) I just found a video which brought me so much peace and so wished to share it with you, your son and others.
http://www.youtube.com/watch?v=0ZL2_MLMKGQ

I have a son in his mid 30s, and after becoming ill, I was talking to him about how he does so much and still remember his response, that it was okay because he has so much energy. That is something I have felt in my body, and have used your suggestion from your recovery, to alternate periods of mild activity with times of rest, and get sleep as our bodies need that so much.

I feel that our bodies need a certain amount of energy to function normally, and then when ill, if our immune systems are depleted to some degree, it takes being attentive to our bodies and 'restoration' to allow our energy levels to return to normal. When we help ourselves in this way, with prudent eating and self care, our return to health can happen more easily, if we are more in harmony with what our bodies and spirits truly need.

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Martha
12/28/2011 11:42pm

Two words jumped out for me - restoration and harmony. Well said.
I found the clip to be soothing and grounding... Thanks Tim

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