Picture
© 2011 TSM
When you are struggling with ME/CFS, it’s hard to see anything else.  ME/CFS controls your energy, your schedule, your choices, your physical comfort, your day, your night and your outlook.  Everything you consider can be interpreted through your ME/CFS colored glasses with a dose of brain fog.

 For someone with ME/CFS, it’s a necessity.  It’s a survival mechanism.  It’s reality.  And fighting this reality is fruitless.  Just more squandered energy and risked relapses.

Remembering that we have restrictions eventually becomes second nature.  And as much as it totally stinks, it can develop into the way forward.  Acceptance of this second nature or inner ME/CFS voice can bring rewards.  Better choices.  Better days.  Beginning to experience better weeks.

For me personally, it took several knock down relapses before I understood this dreaded voice.  Some days I wanted to throttle it.  The message was one that I didn’t want to hear.  But slowly, eventually, I began to listen.  Do you listen to the cautionary messages of your inner voice?  Are you learning to pace yourself better and avoid severe relapses? Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha
 


Comments

Tim B
12/12/2011 4:51pm

Many of your blogs 'touch a nerve' Martha. Today, my daughter arrived with her friend to do some work for me. I had done something I usually don't do, sleep in even with the alarm set.

They were giggling and happy until I asked them to start work. I was half asleep and so probably did not say it as pleasantly as I could have, just a bit irritated.

We ended up arguing about it, and I realized once again it may be better for me to have someone who is not family helping me with business matters. One of the biggest challenges is to attempt to remain cheerful when hurting or irritable, and it is unpleasant to continually remind others I have an illness. I have one friend who is especially understanding, and that helps a lot.

I know I don't do myself any favors when I become angry or irritable, which isn't my usual nature. So after a brief blow up, she left and I went back to bed and slept and read. Taking care of ourselves is especially challenging in these times and I find self care to be one of most important things I can do, even if it means putting things off or forgiving myself when I am not at my very best.

I just wish others who are not ill had a smidge more understanding .. ok, a lot more understanding!

Reply
Martha
12/12/2011 6:18pm

Thanks Tim. We can have the best of intentions and feel thankful for help but when we're feeling especially sick, we often don't respond the way we'd wish. I made a lot of call backs to share why I wasn't my best. The poeple who cared, understood.

Reply

Your comment will be posted after it is approved.


Leave a Reply