...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Routine – Each and Every Day After Day

10/27/2020

2 Comments

 
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If I had to pick one word that would describe my successful return to health after struggling with ME/CFS, it would be monotonous.  Daily record, energy patterns and attitude are close seconds but ultimately the best word is monotonous.  Did I mention monotonous?  It was SO monotonous.  Day after day monotonous.  Are you starting to feel it?  Tedious, lacking in variety, repetitious, monotonous.  The same routine every day.  Monotonous day after monotonous day.
 
At the depths of my struggle, this monotonous routine required me to take a two-hour nap twice a day.  Full disclosure – I HATE naps.  I haven’t napped since I was a toddler.  Even then, I am told I was uncooperative during nap time.  For whatever reason, unless I am sick or just come off an all nighter, I am not tired during the day.  Daytime bed rest is like jail for me.  So, my monotonous routine required monotonous bed rest.  Even if I wasn’t sleeping, I had to be in bed with my eyes closed.  Yeah, monotonous. 

 
Sometimes it seemed to take an eternity to get to the end of a day.  And what was my reward?  Bed rest.  Monotonous bed rest.  And as my energy started to return, it was even MORE monotonous still following the napping and resting routine.  But it worked.  It all paid off.  So, as you study your patterns and find the clues to your version of ME/CFS, find a way to manage the monotony of repetitious days.  How do you manage the monotony?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.
Be Well Again,
Martha

2 Comments

ME/CFS Progress –Review Your Patterns

10/6/2020

0 Comments

 
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For many, Fall is the gateway through which we return to familiar patterns after the long warm days of summer.  Hopefully, we’ve spent some time in the outdoors and had a break or two from the norm.  If you’re struggling with ME/CFS, the norm is the inability to function as a healthy person.  So, the long days of summer may have only served to put an exclamation point on your disability and frustration which could have resulted in a push-relapse cycle…
 
As we return to normal patterns, it is obviously subjective.  What a typical day looks like for one ME/CFS patient, can be completely different for another.  But as each patient looks back over the past year, it would be wonderful to see improved health since last Fall and disappointing to feel worse.  Which applies to you or those you care for?  How do you get on the improved track?
 
For some, patterns are the key - unique patterns for each patient.  Specific to each patient and situation.  The key to recognizing patterns is keeping a detailed health log.  As resistant as some may be to this idea, it is a focused way to get a handle on your unique version of this wastebasket diagnosis of ME/CFS.  A patient’s memory is impaired and often useless for holding the train of thought during a conversation.  How could the same person hold a week of patterns in his/her head?  And then have the recall to see progress over a year?

 
If you are a patient and you are not keeping a daily health record, start today.  Start right now.  Get a pad of paper, a spiral notebook, the back of an envelope – just start writing down a brief summary of your day.  If you have been keeping a record, what seems to be the most valuable information in your record?  What is missing and would help to know?  Please COMMENT or send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.
Be Well Again,
Martha


0 Comments
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    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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