© 2011 TSM
My apologies for missing my blog last Tuesday but even my hardened 11th grade French teacher would have given me a bye week. My son had surgery which hospitalized him for six days followed by a readmission due to complications. During the many days I spent with him wading thru the copious obstacles of our medical system, I noticed all the families who were also spending their holidays in the hospital. I thought often about how I coped with holidays back in my ME/CFS days.
Basically, I had to abandon all visions of ‘the ideal’ holiday, whatever that meant. While I was still riding the rollercoaster of denial, my holidays were horrendous push/crash cycles. Mostly crash. After I started following the protocol, it was an anguished series of choices to try to stay within my known limits. Whatever success I had was tinged with a dose of guilt and a tad of anger at the medical system and its failure to unravel the mystery of ME/CFS. But my holidays did get better as I came to understand my version of ME/CFS and what worked or didn’t.
My son came home last night and we are hopeful that he’s home to stay. How did you cope with your holidays? Were you able to manage some balance in your energy expenditure or was it push/crash? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
Basically, I had to abandon all visions of ‘the ideal’ holiday, whatever that meant. While I was still riding the rollercoaster of denial, my holidays were horrendous push/crash cycles. Mostly crash. After I started following the protocol, it was an anguished series of choices to try to stay within my known limits. Whatever success I had was tinged with a dose of guilt and a tad of anger at the medical system and its failure to unravel the mystery of ME/CFS. But my holidays did get better as I came to understand my version of ME/CFS and what worked or didn’t.
My son came home last night and we are hopeful that he’s home to stay. How did you cope with your holidays? Were you able to manage some balance in your energy expenditure or was it push/crash? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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