...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Holidays – Gift to Yourself

12/16/2014

4 Comments

 
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It’s one week to go until December 25th and we’re in the midst of many religious and cultural holiday observances.  Whatever you celebrate at this time of year, we’re getting to the thick of it and we’re feeling the constraints on time and energy to get it all done.  When I was struggling with ME/CFS, this was a critical decision time that determined how my holidays would play out.

Would I choose wisely and slow the pace down so I could feel reasonably well at the height of the holidays or would I keep pushing to the finish line?  In my early years of struggling with ME/CFS, it was always the latter.  No matter what good intensions I held, invariably I over did and was crashing thru the culmination of our holiday celebrations.  It wasn’t until I began to get a taste of feeling better that I understood the importance of stopping the rush of the holidays.   

This holiday season, the most important gift you give is the one to yourself.  The gift of letting go of most of the Fa La La and napping instead.  Watch a favorite movie.  Ask a friend to pick up a specific gift item or some groceries while they’re out doing their own shopping.  Order online.  Linger over a hot cup of afternoon tea.  Call your loved ones and let them know that you’re thinking of them and that you’re resting so you’ll be up for the holiday events.  The more you give yourself the gift of rest and reasonable pacing, you will actually be giving your family and friends the gift of a stronger and more participatory you during the holidays.

Are you giving yourself the gift of energy for the holidays?  What are your strategies?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for my next posting after the New Year.  And consider being part of the conversation.


Wishing you and your loved ones a Healthy and Blessed Holiday,

In the New Year, Be Well Again,


Martha

4 Comments

ME/CFS Holidays – The Gift of Helping

12/9/2014

2 Comments

 
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Someone asked me what I’d like for the Holidays and honestly I couldn’t think of a thing I needed or wanted.  Maybe a technology upgrade but not the typical holiday gift items that one would search for while wandering the mall among the frenzied herds.  When I was struggling with ME/CFS, and someone asked what I wanted for the holidays, all I could think of was my health.  And of course they couldn’t give me that.

 At the time, I don’t remember having the clear thought process to be able to articulate the kinds of ‘gifts’ that would have been truly helpful in supporting my recovery.  With hindsight, now I can think of many that would have been much appreciated.  In my younger days when I was short on cash, one of my favorite ‘go to’ gifts was the personal gift certificate.  I would think of something I could do for the recipient and create a certificate that could be presented to me when the service was needed.

 Imagine all the helpful things that people could do for you as you struggle with ME/CFS.  What would you value in a personal gift certificate?  What do you wish was in your helping gift?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

 Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,


Martha

2 Comments

ME/CFS Choices - The Holiday Bustle

12/2/2014

2 Comments

 
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Before I was sick with ME/CFS, the holidays were a blur of activities in addition to the normal work and family commitments.  A Healthy person struggled to get it all done.

Then I went through four holiday seasons struggling with ME/CFS.  For two of them, I was bedridden for most of each day.  As is often the norm for ME/CFS sufferers, I was pretty hard on myself.  All I could think of were the special holiday things that my kids and family weren’t enjoying because of me.  But I couldn’t do anything about it.  So those holidays passed with me needlessly feeling down.

Then came a holiday season when I was feeling stronger – not fully well but better.  And of course, true to form, I wanted to make up for the ‘lost holidays’.  Lessons can be tough to learn.  Gratefully, I had people around me and a voice in my own head that said, “Do only what you enjoy and can handle - let the rest go.”

Now that I am fully well, our holidays are still scaled down and we all like it that way.  It’s more like a delightful sampling of what the season offers than a forced and frenzied banquet.  We don’t do every activity every year.  We switch it out.  Our gift giving is mostly donations to charities, Yankee Swaps (even with family) and special consumables (wine, soup mixes, teas, etc).  We haven’t sent cards in years.  I’m thinking I might send an e-card this year.  Maybe…

How do you get through this season without straining your energy limits and pushing yourself into relapses?  What do you happily forego from the holiday hustle and bustle list?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
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    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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