Category: Humor

ME/CFS Humor – Sometimes It Helps

1/22/2019

Over the years I’ve been able to develop a thick skin when it comes to hurtful comments from others about my struggle with ME/CFS. Dismissiveness or even subtle innuendoes suggesting that my illness was a mental health problem are a reality and I’ve come to deal with them as part of the package of ME/CFS. But recently, someone whom I thought ‘got it’, belittled my illness with a wave of her hand referring to it as a brief bout with severe depression so just get over it. REALLY!?!

I’ve now got Seth and Amy of SNL zinging their Weekend Update one liners across the video of my mind. Saying that ME/CFS sufferers are only severely depressed is like saying that ulcers can be cured by thinking pretty thoughts. REALLY!?! If ME/CFS patients are mental health cases then MS is a lifestyle choice. REALLY!?! If you think that Prozac is the cure for ME/CFS, then I’ve got a bottle of snake oil that will cure your condescending attitude. REALLY!?!

Sometimes humor is the best medicine. Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha

0 Comments

ME/CFS Guest Blog – Dale Miller’s list of Health Ideas

5/1/2018

2 Comments

Dale Miller recently sent me his list and I wanted to share it. It’s long so I’ve selected twenty to start. Pace yourself LOL.
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I have been reading your blog for at least a couple of years. You always have a good thought in there that is valuable in helping me run my life. I’ve been dealing with these issues for over 15 years. At different times, I have been in the pit of despair at ever being able to do anything, and at other times, ringing with ecstatic joy at being reborn into a full rich exciting life. It has taken me a long time, but most days, I have learned to savor each day or hour that I am able to function and show up for my life.

Overtime, for me, I have learned that maintaining optimum health is a long haul operation. My view is that watching out for and caring for my body just came at an earlier time in my life than it does for most people. Everyone, if they want to operate at their peak has to be careful to eat the right foods, watch over their mental processes. get the right health care, proper rest, good companions, love and care. We all need/want these things, not just people with a chronic health condition.

Take care, Dale

HEALTH IDEAS
April 19, 2018

Positive/negative affirmations. Whenever you say, “I’m tired. I’m old.” These are negative affirmations. You may not believe in affirmations, nevertheless you may be doing negative affirmations every day!
Develop a tiny interest, something to think about every day.
Keep the mind off sickness, push the mind over to the interest.
Audible books for distraction. Try happy tv or radio.
Music always playing in the house.
Dance it out.
Sing, doesn’t matter if you have a lousy voice, raises the endorphins.
Find someone or animal to touch.
Small exercise daily, even if only visualizing.
Starfish 10x a day. A starfish is when you raise your arms as high as possible over your head, inhale deeply, then bring your arms down and exhale.
Understand completely the connection between illness and depression. If you are long-term ill, you are probably depressed. Suggest Jonathan Harr’s book, Missed Connections for what to do about it.
Constantly be looking for something to feel good about. Roses, flowers, puppies, kittens, dogs.
Find all the parts of your body which are working. Chances are, 97%+ is working, notice that and catalogue if you need to. Focus on what part of the body is working and functioning, not on what is not.
Slow down, taste everything, smell everything, hear everything.
Correct your posture constantly. A slump posture makes you feel bad and breathe shallowly.
Negativity bias. This is a bias that all humans have which is a survival skill. It’s very valuable if there is a saber tiger in your immediate vicinity. Otherwise, you are trained to always seek the negative. This is not helpful if you are trying to recover from a chronic illness.
Control your input, you may have to lose negative friends and family.
Forgive everyone who has ever wronged you in this life-including yourself.
Read inspiring material every day.
Find someone or something to love unconditionally, hopefully yourself.

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Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha

2 Comments

SEID/CFS Humor – Sometimes It Helps

6/16/2015

4 Comments

Over the years I’ve been able to develop a thick skin when it comes to hurtful comments from others about my struggle with SEID/CFS. Dismissiveness or even subtle innuendoes suggesting that my illness was a mental health problem are a reality and I’ve come to deal with them as part of the package of SEID/CFS. But recently, someone whom I thought ‘got it’, belittled my illness with a wave of her hand referring to it as a brief bout with severe depression so just get over it. REALLY!?!

I’ve now got Seth and Amy of SNL zinging their Weekend Update one liners across the video of my mind. Saying that SEID/CFS sufferers are only severely depressed is like saying that ulcers can be cured by thinking pretty thoughts. REALLY!?! If SEID/CFS patients are mental health cases then Aids is a lifestyle choice. REALLY!?! If you think that Prozac is the cure for SEID/CFS, then I’ve got a bottle of snake oil that will cure your condescending attitude. REALLY!?!

Sometimes humor is the best medicine. How do you use it? Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays. And consider being part of the conversation.

Be Well Again,

Martha

4 Comments

ME/CFS Energy – Have a Savings Plan

1/22/2013

2 Comments

I had to laugh out loud yesterday at the picture that accompanied an article I was reading about poor money habits for financial retirement planning. There was an image of a pink piggy bank and a man with a hammer sneaking up behind contemplating a robbery. The article pointed out that money needed to be regularly going into savings not out in order to retire successfully. Of course it reminded me of when I was struggling with ME/CFS and in the beginning, I would spend, spend, and spend every ounce of energy I had in order to get through a day. Then I would collapse because I had emptied myself of any reserve. After some resting I would try to do it again having never really healed or regained any reserve.

It took me many bad cycles of spend and crash before I finally started to understand the need to build up a solid reserve of energy before an activity. I had to flip the whole approach around so that first I built up my energy then I used some for a specific need. But I stopped before I was fully spent and I rested again. Overtime, the reserve built up until I had a deep well of energy to call upon when needed. But I still made sure that I continued to regulate my activity so that as I began to get well again, I maintained the energy reserve. So unlike the man with the hammer, I didn’t use up every drop of energy day to day.

Eventually my reserve was solid enough that true healing began and I was able to walk a path back to wellness. How do you manage your energy reserves? What are your strategies? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays. And consider being part of the conversation.

Be Well Again,

Martha

2 Comments

ME/CFS Gifts – Pace Yourself

12/11/2012

2 Comments

I’ve been thinking a lot about pacing - for myself, for my family, for the seemingly swirling world around me. Are we goal driven or just driven? Are we actually going anywhere? Do we arrive? Are we missing the whole point of the journey itself by never slowing down? When I was struggling with ME/CFS, I was forced to slow down. For a time, I was forced to completely stop.

It wasn’t until I began to recover, slowly but surely, that I also began to understand the ‘gift’ of being forced to slow down. Not that I recommend ME/CFS as a good path to gaining perspective on pacing your life but it was how I got the message. Making choices and pacing have become part of my new way of being. I do smell the roses now.

If you worry about what you’re missing as you struggle with ME/CFS, this quote will make you smile.

"Slow down and everything you are chasing will come around and catch you."
John De Paola

It reminds me of a Saturday morning cartoon where a dog is chasing a cat around in a circle. The cat steps off to the side and just watches the dog who continues to run around the circle. I can remember the road runner doing this to wile e coyote too.

The holidays are a wonderful time of lights, kindness and family. But we can allow this time to be twisted into a crazed pace that can drive us into a push/crash cycle. Although ME/CFS is not the preferred method for receiving the ‘gift’ of pacing, it is the way we’ve received it. Open it up and appreciate the message. How are you pacing your holidays? What are your strategies? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays. And consider being part of the conversation.

Be Well Again,

Martha

2 Comments

ME/CFS Humor – Sometimes It Helps

5/15/2012

4 Comments

Over the years I’ve been able to develop a thick skin when it comes to hurtful comments from others about my struggle with ME/CFS. Dismissiveness or even subtle innuendoes suggesting that my illness was a mental health problem are a reality and I’ve come to deal with them as part of the package of ME/CFS. But recently, someone whom I thought ‘got it’, belittled my illness with a wave of her hand referring to it as a brief bout with severe depression so just get over it. REALLY!?!

I’ve now got Seth and Amy of SNL zinging their Weekend Update one liners across the video of my mind. Saying that ME/CFS sufferers are only severely depressed is like saying that ulcers can be cured by thinking pretty thoughts. REALLY!?! If ME/CFS patients are mental health cases then Aids is a lifestyle choice. REALLY!?! If you think that Prozac is the cure for ME/CFS, then I’ve got a bottle of snake oil that will cure your condescending attitude. REALLY!?!

Sometimes humor is the best medicine. How do you use it? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays. And consider being part of the conversation.

Be Well Again,

Martha

4 Comments

ME/CFS Humor – Sometimes It Helps

ME/CFS Guest Blog – Dale Miller’s list of Health Ideas

SEID/CFS Humor – Sometimes It Helps

ME/CFS Energy – Have a Savings Plan

ME/CFS Gifts – Pace Yourself

ME/CFS Humor – Sometimes It Helps

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ME/CFS Humor – Sometimes It Helps

ME/CFS Guest Blog – Dale Miller’s list of Health Ideas

SEID/CFS Humor – Sometimes It Helps

ME/CFS Energy – Have a Savings Plan

ME/CFS Gifts – Pace Yourself

ME/CFS Humor – Sometimes It Helps

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