...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Selectivity – A Time to be Picky

5/28/2013

6 Comments

 
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The main reason for our move was to downsize.  While raising our kids, a larger home was wonderful to have.  But lately, we seemed to be dwarfed by the large structure.  So we have accomplished that task and now live in a significantly smaller home.  And although we thought we had divested of a lot of the materials things that filled that larger home, we find ourselves surrounded by piles of boxes - in the basement, in the garage, in the living room, everywhere.  I know what’s in some of them but honestly, whatever is in the rest, I clearly don’t need.  So of course it reminded me of my struggle with ME/CFS and how much pain it caused me to have to let go of many of the parts of my life that I could no longer handle – at least while I was healing.

At the time, I couldn’t image life without some of those activities and I allowed their loss to depress me.  For a while, I valued them more than my health.  But in time, as I focused on getting well and began to see improvement, I had the first real opportunity to add one thing back into my recovery plan.  What would I chose?  What had I missed most that would fit in with my improving energy levels without compromising my progress? 

Now, as I make choices in a new smaller home, it’s like clearing everything off the limited kitchen counter space and then making intentional decisions about what to prioritize and put back.  And now, as I also experienced back then, I liked the selectivity of what to include in my life.  Before I was sick with ME/CFS, I was ‘doing’ a lot of things that were not fruitful personally – things that seemed important at the time but were really just fillers and ‘invented’ priorities by a Type A personality.  I finally began to see that I needed to be selective - It was definitely a time to be picky.  What picky choices are you making?   Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

6 Comments

Welcome to the Conversation – A Beginning

7/19/2011

0 Comments

 
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© 2011 TSM
I have held the intention to start this CFS (or fill in your preferred name) conversation for a while.  But life has been full of growth, transitions and holding patterns for many of my loved ones so I have been fully present for them.  And consequently, not so present for myself.

With the departure this coming Fall of my youngest off to college, I am feeling some of the usual sadness of the so called “empty nester” but honestly, not so much.  I am celebrating the culmination of this phase of my parenting and I am so proud of both of my kids and the mature young adults they have become.  They have much potential and a solid foundation upon which to build their futures.  I am most proud of the caring people they have become and their capacity to be part of the solution.

I appreciate the way some things seem to come around full circle.  The child born from the nightmare CFS pregnancy so many years ago is my youngest whose departure now provides the time and the energy on a daily basis to return to the CFS community.  Somehow that seems fitting.

Most importantly, and mercifully for the readers, this blog is not intended to be about me.  Although I am a writer and am quite capable of generating a stream of endless self-centered babble, my hope is that this space will house a conversation about CFS and its many aspects which affect our health and our lives.

There is much hard earned wisdom in our community and we should share it.  No one has the market on THE secret to defeating CFS.  It is at best a shadowy disease (more about that in my next blog) and a lot of what we actually know about it comes from those who have had it or those who are still struggling with it.  We also are fortunate enough to have many health care providers, family and friends who know us well and who recognize that CFS is a real physical disease.  They have wisdom to share as well.

So please consider becoming a part of the conversation by commenting, asking questions, suggesting topics or guest blogging.  Think about joining the community by sending a short thumbnail about your CFS story with a bit of your acquired wisdom and attach a pic of yourself or an image which appeals to you.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha
0 Comments
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    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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