Although the patients experience with ME/CFS/SEID can differ, there is one consistent thread that I hear from everyone – Helplessness. This disease persistently beats us down. With the lack of recognition, with the lack of medical treatment, with the lack of understanding from many of those around us, and with our own self doubts. It can be daunting. And in the face of this, it can be easy to allow ME/CFS/SEID to control us and to give in. We forget that there are aspects of this disease that we do have control over.
We control our daily choices about rest, nutrition and supporting our immune systems. We control our data collection and review of patterns. We control how we communicate and seek support. We control our own attitudes and approach to ME/CFS/SEID.
I encourage you to start by taking control of just one of these areas of your ME/CFS/SEID struggle. Then over time as you feel confident in that area, add something else. Slowly, patiently and consistently begin to take back what you can control about ME/CFS/SEID.
My wish for all of you is a year filled with step by step success in taking control of ME/CFS/SEID. Where are you going to start? Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,