I was recently in a remote place with no cell service and no access to WiFi. At first it was bliss. No phone ringing. No text messages requiring immediate response. No daily diet of news feed. Just quiet and my own thoughts. But of course, I eventually felt a bit isolated and disconnected. It reminded me of when I was struggling with ME/CFS/SEID and how alone I felt at times.
We are trained in our culture to be independent. To be strong and capable. The old ‘boot strap’ adage comes to mind. We believe that people who are dependent are weak. They are inadequate. We somehow learn not to ask for help. Then we find ourselves in a situation like ME/CFS/SEID where we need to ask for help and we can’t. We don’t want to be a bother or impose. We don’t want to appear weak or needy.
So, we find ourselves struggling with ME/CFS/SEID, which is a cruel disease that leaves us feeling better one day and crashing the next, and we’re fearful of asking for the help – which could be key to our recovery – because we’ll be seen as weak and ‘just depressed’. Doubly cruel.
It’s important to take a good look around and see those in your life who could help. Make an effort to connect. Make an effort to explain what’s happening to you. If you’ve read my book, give it to them and ask them to read it. If people don’t understand what you’re going through, it’s hard to support you.
One lesson I learned after I was fully well again – people who cared, who wanted to be connected and who wanted to help had no idea what to do. They need your help to understand and to know how to help you. Divide up your needs into smaller pieces so it won’t be too much for one person. What are you doing to be connected and to get help? What are your strategies ? What works for you? Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
We are trained in our culture to be independent. To be strong and capable. The old ‘boot strap’ adage comes to mind. We believe that people who are dependent are weak. They are inadequate. We somehow learn not to ask for help. Then we find ourselves in a situation like ME/CFS/SEID where we need to ask for help and we can’t. We don’t want to be a bother or impose. We don’t want to appear weak or needy.
So, we find ourselves struggling with ME/CFS/SEID, which is a cruel disease that leaves us feeling better one day and crashing the next, and we’re fearful of asking for the help – which could be key to our recovery – because we’ll be seen as weak and ‘just depressed’. Doubly cruel.
It’s important to take a good look around and see those in your life who could help. Make an effort to connect. Make an effort to explain what’s happening to you. If you’ve read my book, give it to them and ask them to read it. If people don’t understand what you’re going through, it’s hard to support you.
One lesson I learned after I was fully well again – people who cared, who wanted to be connected and who wanted to help had no idea what to do. They need your help to understand and to know how to help you. Divide up your needs into smaller pieces so it won’t be too much for one person. What are you doing to be connected and to get help? What are your strategies ? What works for you? Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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