...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Attitude – Find Thankfulness

11/26/2019

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When I sat down to blog about Thanksgiving, I looked at what I had written last year.  I can’t do a better job of expressing how I feel about this holiday and struggling with ME/CFS at the same time.  So here it is again:
 
Thanksgiving traditionally generates clichés about thankfulness.  The mantra basically goes like this:  Be thankful for what you DO have, not what is missing.  Most of us would agree with this outlook.  It is better to focus on the positive.  But it isn’t easy to do especially when you’ve been struggling with ME/CFS for a year or for 20 years.
 
When I was sick, I would allow myself to indulge in some self pity around this time of year but I knew that was totally unproductive and a waste of what little energy I had.  I would then get irritated with myself for my self-centered attitude and so just added more negativity to my load.  But it can be unfair to expect a person who is struggling with a body that can’t handle normal activity to be upbeat, positive and ultimately thankful.
 
So as the rest of the world around me went about their daily routines, I would look at my life and try to find something to be thankful for.  Mostly, I focused on the few people around me who understood what I was going through and supported me in large and small ways.  I made a point to tell them how much I appreciated what they did.
 

And after I let go of the negativity toward myself, I realized that I needed to appreciate the work I did all year long.  The work of getting well again.  Sticking to the snails pace recovery, following the protocol when I didn’t want to and being present in my life in whatever way I could realistically handle.
 

Are you finding things to be thankful for?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

And for you and all of your loved ones,
I wish you a warm and Bountiful Thanksgiving,
Be Well Again,
Martha


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Recovery Opinions – Some More Hopeful Than Others

11/12/2019

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ME/CFS patients seem to be firmly in either the ‘can’ or ‘can’t’ recover camps.  As one might guess, most of the opinions can to be related to whether or not each has been able to recover.  And then there are the rest: fence sitters who are hopeful and want recovery to be possible. 
 
For me, I keep coming back to what I feel is so unfair about this ME/CFS diagnosis.  The fact the even though thousands of patients get this label, they actually don’t all have the same disease.  So using the same treatment and approach, two patients can have completely different outcomes.  Or one has great success and the other minimal improvement.  Yes, I believe that ME/CFS patients can recover.  Can they all recover using the same treatment?  No.  Can they recover using the same protocol and strategies?  Call me crazy but my answer is yes.
 
My training as a health professional drilled into me two things:  first, despite all the marvelous progress that medicine had made over the last century, we still only know and understand a small portion of the intricacies of the human body.  Second, the way that we learn things is to collect data, hypothesize, test, evaluate and then collect more data, etc.

 
Personal data collection (yes, I keep harping on this) and successful strategies seem to be the way out for many.  Have you developed any strategies that work for you?  Please COMMENT or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha


2 Comments
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    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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