...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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Recovery Opinions – Some More Hopeful Than Others

11/12/2019

2 Comments

 
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ME/CFS patients seem to be firmly in either the ‘can’ or ‘can’t’ recover camps.  As one might guess, most of the opinions can to be related to whether or not each has been able to recover.  And then there are the rest: fence sitters who are hopeful and want recovery to be possible. 
 
For me, I keep coming back to what I feel is so unfair about this ME/CFS diagnosis.  The fact the even though thousands of patients get this label, they actually don’t all have the same disease.  So using the same treatment and approach, two patients can have completely different outcomes.  Or one has great success and the other minimal improvement.  Yes, I believe that ME/CFS patients can recover.  Can they all recover using the same treatment?  No.  Can they recover using the same protocol and strategies?  Call me crazy but my answer is yes.
 
My training as a health professional drilled into me two things:  first, despite all the marvelous progress that medicine had made over the last century, we still only know and understand a small portion of the intricacies of the human body.  Second, the way that we learn things is to collect data, hypothesize, test, evaluate and then collect more data, etc.

 
Personal data collection (yes, I keep harping on this) and successful strategies seem to be the way out for many.  Have you developed any strategies that work for you?  Please COMMENT or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha


2 Comments
Tim Boland
11/15/2019 12:23:44 am

Your words tonight Martha remind of something I heard long ago, that when someone is being brought to the hospital with a serious condition, in an ambulance, it is the ones who stay awake on the way, are those who tend to survive, of course this depending on whether they are capable of staying awake at the time.

For those who are in the 'wanting to recover' category, it is often Attitude that helps greatly to shape our futures, those wanting to be well and those resigned to 'their fate'.

When I first knew for certain that I had something serious happening with my body, I had a woman who helped me with housework and grocery shopping. I related a story to this woman that I read in a prominent magazine many years before, about a woman in the early days when HIV/Aids was first being recognized, who was diagnosed with this illness.

The woman in the story was determined that she was going to fight for her health, a kind friend lent her his cabin for as long as she wanted, as I recall a beautiful quiet place on the Maine coast. It was a painful struggle, in the beginning, to just to walk out to get the mail. She lived in solitude, changed her diet slowly to a healthy one, read positive and uplifting books and through will and determination and changing her life totally from a stressful one to one living a more relaxed life, when checked by doctors perhaps a year later, there was no more evidence of HIV in the tests. The doctors tested again and the result was the same, she was well.

This woman who helped me had quite an emotional reaction to this story, proclaiming 'That's Impossible!' and that for that illness of HIV/Aids, there is no cure. For those who refuse to believe in the possibility of healing and wellness, there are no words that can convince them.

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Martha
11/18/2019 12:20:19 am

It's hard for some people to understand that healing is about more than just medicine. Good story Tim. Thanks!

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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