By definition. Everyone who has ever been given the diagnosis of ME/CFS knows what they don’t have. It’s a long list of known diseases that have diagnostic tests and treatment plans. Being given the diagnosis of ME/CFS means that your healthcare provider has run out of ideas. They’re stumped. And depending on how well they know you or how sick you present at your appointments, they aren’t sure whether or not to refer you to a mental healthcare provider. Based on the conversations I’ve had with physicians, they generally don’t like to give the diagnosis of ME/CFS. They would much rather figure out what’s going on with you and have a concrete treatment plan with a positive
prognosis.
Some providers are good at partnering with ME/CFS patients to design a treatment plan, others not so good. But whether or not you have a working relationship with your provider, you are the one who will manage your ME/CFS on a daily basis. You are the one who will keep a daily health log – no groaning please. You are the one who will observe your patterns. You are the one who will need to be a lab rat. You are the one who will oversee your personal case study of one.
To be successful, you need to keep evaluating. ME/CFS is your diagnosis. OK – accept it. You’re in a waste basket diagnosis that includes many possible diseases which currently are unknown. So which one do you have? What’s your version of ME/CFS? As you begin to treat the most severe symptoms, you will start to see clearer patterns. Some symptoms will fade and lesser ones will become more noticeable. Clues will appear. Pay attention and keep evaluating. Are you monitoring your patterns? Are you beginning to understand your version of ME/CFS? Please COMMENT on this blog or Send in your thoughts and I’ll post
them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
prognosis.
Some providers are good at partnering with ME/CFS patients to design a treatment plan, others not so good. But whether or not you have a working relationship with your provider, you are the one who will manage your ME/CFS on a daily basis. You are the one who will keep a daily health log – no groaning please. You are the one who will observe your patterns. You are the one who will need to be a lab rat. You are the one who will oversee your personal case study of one.
To be successful, you need to keep evaluating. ME/CFS is your diagnosis. OK – accept it. You’re in a waste basket diagnosis that includes many possible diseases which currently are unknown. So which one do you have? What’s your version of ME/CFS? As you begin to treat the most severe symptoms, you will start to see clearer patterns. Some symptoms will fade and lesser ones will become more noticeable. Clues will appear. Pay attention and keep evaluating. Are you monitoring your patterns? Are you beginning to understand your version of ME/CFS? Please COMMENT on this blog or Send in your thoughts and I’ll post
them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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