...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Loss – Can be Temporary

3/26/2013

2 Comments

 
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© 2013 TSM
During my darkest days of struggling with ME/CFS, I mourned the loss of my healthy life.  The life that allowed me to run about with endless energy until I was spent, needing only a few nights of solid rest to recover.  And I held onto that loss for a while allowing it to further deepen my mood and draw precious energy from what little I had.  It was sometimes combined with resentment and a bit of self-blame enabling a solid blow to my psyche.  Fortunately, this was not a place I could live in for long.
    
As I began to understand that my medical practitioners, although most were well intentioned, had no clue what was wrong with me, I knew that it was going to be a hard road back to a healthy life.  And for me, it wasn’t an option not to try.  I could not accept this loss of my healthy life as a permanent chronic condition although that was the opinion I received over and over.  OK, I readily admit that I’m an optimist at heart and stubborn as well.

As I began to treat myself like a case study of one, the healing started, slowly - literally, painfully slow.  And it wasn’t until I was fully well that I began to find others who had also fully recovered.  Unfortunately, ME/CFS is so stigmatized that even former patients don’t talk about it.  So despite the pervasive message that patients don’t fully recover from ME/CFS, it’s not true.  ME/CFS can be temporary.  How do you handle moving forward from this feeling of loss?  What are your strategies?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
pat
3/26/2013 01:44:21 pm

Martha, I so love your passion in your weekly postings. It truly takes one to know one. Your words of "loss" so resonated with me. It is a dark place. For the rest of my life I will remember the months of fatigue. I can't believe what a difference a year makes. I am a new and different person. I value my energy like never before. Respecting my rest, acknowledging the joy of energy and making wise choices with my time are priority. What a wonderful gift you give me and others to remember so we can hope and continue the gratitude of renewal. Thank you a thousand times.

Reply
Martha
3/26/2013 02:13:33 pm

Pat, it is wonderful that you have made so much progress in the last year! Congratulations! It is for you and thousands like you that I remember and write about ME/CFS. Each and every day I feel gratitude for being fully well again and I want to give back. The path to recovery is long, slow and requires patience. I am pleased to be able to walk that path with you. Ultimately ME/CFS can be defeated. I hope that more patients can get there with the encouragement and help of this community. Thanks!

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    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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