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ME/CFS Out of Power – Patients Get It

6/24/2014

2 Comments

 
Picture© 2014 TSM
We recently lost our power for two days and it took a while to get things back to normal after the power was restored.  During the outage, I was thinking about how we often take for granted the watts that invisibly supply the energy we have come to depend on to power our lights, heat, refrigeration and cooking.  We don’t really think about the mechanics of how it’s produced, delivered and consumed. It reminded me of how I lived before I was sick with ME/CFS.  I gave little thought to how my body generated energy, delivered it to my cells and how I, at times, recklessly consumed it as if there was no limit.  My type A personality was go, go, go even when I had colds or the flu.  That changed abruptly when I came down with ME/CFS.

Now that I am well, my first thoughts are still focused on whether or not I have the energy to take on what has been set before me.  Sometimes it’s a choice.  Often it’s a responsibility.  And I am cautious to evaluate what I can handle and under what conditions I can do it. I’m especially clued into looking for partners to help get something done.  I had learned the hard way when I was recovering from ME/CFS that the final task of simply carrying the heavy bags into the kitchen from the car and putting the food away could be the tipping point that turned an otherwise successful trip to the grocery store into a ME/CFS setback.

What have you learned about your ‘energy envelope’?  How do you keep your urge to go, go, go in check?  Please COMMENT on
this blog or Send in your thoughts and I’ll post them with your permission. 
You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
Tim Boland
7/3/2014 06:10:04 pm

I wanted to write a comment earlier but didn't feel my thoughts complete. My son and his family came for a visit over this past weekend, and it was wonderful seeing everyone.

Yet I still had a hard time carving out what I needed for myself, I found myself standing for much longer times than I should, which exacerbates pain for me. Years ago I had counseling and resented when she told me that I, like her, have co-dependent issues.

Mainly this means often doing or trying to do things to please others, rather than what is best for my own well being. In fact it is a key reason why I became ill this time, not attending to my own body's sense and intuition of what was right for me at the time.

Martha, I wondered if in future you might address this issue which many of us face, that of wanting to be there for others, yet knowing inside we are too tired or a sense sometimes that doing a certain thing might even be injurious to us.

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Martha
7/4/2014 01:41:30 am

Most of us struggle with doing for others at our own expense - physical or otherwise. Layer on a debilitating disease like ME/CFS and it can be personally harmful. Thanks Tim for the idea to explore this topic more.

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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