...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Struggle – Many are on Similar Roads to Recovery

4/23/2013

2 Comments

 
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The bombings in Boston have occupied my mind this past week.  I’ve been especially thinking about the people whose lives were lost and those whose lives were permanently changed in an instant - so many who will face a long road of recovery with some of them coping with the loss of limbs.  My heart goes out to them.

Good health is a gift that is often not appreciated until one loses it.  As ME/CFS sufferers, we know the loss of a normal healthy life and not being able to fully function.  And although the causes of our loss of functionality are different, the struggle is similar.  While we work to unravel the clues to our own versions of ME/CFS, we fight many of the same emotional and psychological demons,
the endless hours of being forced to ‘be a patient’ and the loss of parts of our self-identity.  It is a long road to recovery for many with dis-ease.  The key to getting there is focus, determination and support. 

There are many in our communities who are on similar paths to recovery.  Our hearts go out to those in Boston.  Do you reach out?  Are you connecting?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
Tim Boland
4/23/2013 04:00:12 pm

I remember as a child when my mother would say 'patience is a virtue' which used to drive my crazy. She also said 'an ounce of prevention of worth of pound of cure'. So often we can use the lessons of others who have suffered or those who have a touch of folk wisdom.

It is difficult to have patience to arise each morning, some mornings I feel much better and in tune with my body. Then others, I awaken with more pain than seems 'fair'. When I first developed the symptoms I had now, I had a man come to my house to do some 'body work', a very gentle kind of massage and getting in touch with my body. He said something one day that surprised me 'Tim, it is important to have compassion for yourself'.

I didn't realize that I was being so hard on myself, somewhat unforgiving. It is hard when I realized that I could likely have prevented this with more self care, and for a long time I wished for my body and life to be as it was. Now I realize the road is longer than I had hoped yet I see a steady improvement, most days, when I simply remind myself that I need to be there for me.

Thank you Martha for this blog and a feeling of connection to you and others who have a similar journey.

Reply
Martha
4/24/2013 01:28:41 am

Every day I hear from more people on this same ME/CFS journey. We are all struggling to unravel our own versions of ME/CFS and to stay the course. Nothing about this commitment is easy. It's all very hard. Kudos to you TIm and to everyone who must greet this path each and every morning and see it through. We try to walk with determination and kindness toward ourselves. Thanks!

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    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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