...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Struggle – Work Every Hour

10/29/2013

2 Comments

 
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Full disclosure – I have been a Boston Red Sox fan since I was a little girl.  I have no idea why the game captured my imagination so young but I got hooked and still am.  Like many of the devout, I am used to the highs and lows of my team.  Right now, we’re on a high.  And of course I’ve been watching the post-game interviews. Without exception the players repeat the same mantra – work every pitch.  They remind me of my struggle with ME/CFS and how I was able to regain my full health.

Like the Red Sox who have approached this entire season with focus on “Every pitch, every out, every inning, every game”, I finally understood after two years of crazy push/crash cycles that I needed to bring my struggle with ME/CFS to “Every hour, every day, every week, every month.”  If I intended to be well again, I needed focus – consistent, every hour focus.

I needed to bring my struggle into the moment and make it the most important factor that effected each decision – everything had to be viewed through the window of my goal to regain my health.  And yes, I was blessed with the opportunity to make ME/CFS my focus every hour.  But it was not without deep sacrifices for me and for my loved ones.  This path is hard and long.  Some days seemed endless.  Some days I lost ground and some days I gained.

And like the Red Sox who went from last to first in one year with pitch by pitch focus, I regained my health in two years with hour by hour focus.  How are you bringing your struggle with ME/CFS into each hour of each day?  What are your strategies?  Please COMMENT or send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha
Go Sox!!  No offense intended to Cards fans.

2 Comments
Tim Boland
11/2/2013 06:59:14 pm

Your blog this week helped a lot Martha. The past two weeks since returning from Idaho, things have been especially hectic with business that only I could address. I have tried to keep my stress levels though. But I needed something extra and found that in your blog.

You speak of the need to put CFS in focus, ‘every hour, every day’. I realized that often my awareness of CFS has been more of an overview, more looking at a sense I have of how have I been doing over the past few weeks. I am aware too on a daily basis but thinking of this in terms of ‘each hour’ helped me to focus more on the here and now, the importance of attending to this illness and paying attention with the hours of Each Day.

It reminds me of what we can learn from more ancient traditions too, like Buddhism, where the emphasis is to move away from being caught in the past, or worries or anticipation about the future. This restrained my progress for some time, as I kept wishing to somehow go back in time, to do things over so I could simply be well.

Accepting that the past is indeed past and focusing on the present was a major obstacle for me.

Reply
Martha
11/3/2013 01:47:44 am

We do tend to spend time looking back and wanting to change what we see. Truth is, we can only change the present and the future. And we all know this but still we sometimes allow the past to eat at us in negative ways. Now is a good time to shift our focus to the present and to stay in the present. Thanks Tim!

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    Hello,  I'm
    Martha Kilcoyne

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     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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