© 2014 TSM Karen recently shared the lifelong struggle she went through to get to a diagnosis of ME/CFS (see blog 6/11/2013) and, like me, eventually determined that she was suffering with ion channelopathy. The approach we both used was to unravel the clues that would lead us to the correct ratios of sodium, potassium, calcium and chloride. The ratios which worked successfully for Karen, were almost the opposite of what worked for me. So even with the same sub-diagnosis, we needed different treatments. And of course this got me thinking about common practice today in ME/CFS treatment.
Most providers who see ME/CFS patients recommend a regimen of supplements. They can include pills, IV, shots and ‘cocktails’. Patients report a range of results with these methods from revitalizing to ‘maybe it helped.’
If you’re seeing a physician who has recommended such treatments, be sure that the ratios and combinations of supplements are based on your metabolism. There are tests and blood chemistries that can be run to get an accurate picture of you and your needs for treatment. Many of these treatments can be expensive and it’s a sacrifice for many to pay for them. If you’re not feeling measurable improvement, revisit your doses and combinations with your doctor.
From my own experience, the first doctor who actually treated me for ME/CFS, relied on his prior experience with ‘patients like me’ and prescribed a similar plan. Although this first step got me to a healthier plateau, it wasn’t until we figured out, through trial and error, what I specifically needed for supplements that I was able to get on the right road to recovery. Are you taking supplements as part of your recovery plan? What do you think of their efficacy? Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And
Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
Most providers who see ME/CFS patients recommend a regimen of supplements. They can include pills, IV, shots and ‘cocktails’. Patients report a range of results with these methods from revitalizing to ‘maybe it helped.’
If you’re seeing a physician who has recommended such treatments, be sure that the ratios and combinations of supplements are based on your metabolism. There are tests and blood chemistries that can be run to get an accurate picture of you and your needs for treatment. Many of these treatments can be expensive and it’s a sacrifice for many to pay for them. If you’re not feeling measurable improvement, revisit your doses and combinations with your doctor.
From my own experience, the first doctor who actually treated me for ME/CFS, relied on his prior experience with ‘patients like me’ and prescribed a similar plan. Although this first step got me to a healthier plateau, it wasn’t until we figured out, through trial and error, what I specifically needed for supplements that I was able to get on the right road to recovery. Are you taking supplements as part of your recovery plan? What do you think of their efficacy? Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And
Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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