© 2011 TSM
With all that we know about ME/CFS being a wastebasket diagnosis, I am frequently caught off guard when someone, who doesn’t even know me, declares that I didn’t have CFS. Could anyone be a member of our community and not know that we are a collection of patients suffering from any one of several diseases clumped together? These ‘experts’ diagnose me from afar. Without so much as a lab result, they decide that I have ‘pick-your-favorite’ disease. Many of these diseases are ones that I was either tested for or followed treatments which would have improved my condition if they had been the problem.
The vast majority of ME/CFS sufferers that I meet have been tested for everything and have pursued every treatment that they’ve heard of – even the ‘wacky’ ones. I tend to attribute this to my observation that most of these same patients were full blow type A personalities when ME/CFS knocked them down. I was one. And what do we do when we get blown off track? We roll up our sleeves and throw our full blown type A personalities right back at it. Of course, that blew up in my face and my experience is not unique but more on that in a future blog.
So who are these ‘experts’ who need to dismiss others in our community as ‘imposters’? What is their agenda? What do you do to deflect this kind of negativity? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
The vast majority of ME/CFS sufferers that I meet have been tested for everything and have pursued every treatment that they’ve heard of – even the ‘wacky’ ones. I tend to attribute this to my observation that most of these same patients were full blow type A personalities when ME/CFS knocked them down. I was one. And what do we do when we get blown off track? We roll up our sleeves and throw our full blown type A personalities right back at it. Of course, that blew up in my face and my experience is not unique but more on that in a future blog.
So who are these ‘experts’ who need to dismiss others in our community as ‘imposters’? What is their agenda? What do you do to deflect this kind of negativity? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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