When I was bedridden with ME/CFS, I was struggling just to do what I could to help myself. The amount of energy I had to reach out to other ME/CFS patients was limited. And at the time, the internet was in it’s infancy in terms of organizational communication. For ME/CFS sufferers today, the World Wide Web is a blessing. Even if you’re house bound, there is a wide selection of organizations working to solve the puzzle of ME/CFS and to support patients and their caregivers.
Someone recently sent me a link to a petition hosted on Change.org which sends a message to the CDC to reevaluate their ME/CFS research and to step up their efforts. It is supported by many regional ME/CFS groups as well as individual researchers. Please check it out and sign it today. And send the link along to your other ME/CFS groups as well as friends and family. This is something we can all DO.
Will a petition change anything? There are no guarantees. But we’ve all witnessed what can happen when people combine their efforts for a cause. Do you know of other petitions or ME/CFS efforts that we can lend our support to? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
Someone recently sent me a link to a petition hosted on Change.org which sends a message to the CDC to reevaluate their ME/CFS research and to step up their efforts. It is supported by many regional ME/CFS groups as well as individual researchers. Please check it out and sign it today. And send the link along to your other ME/CFS groups as well as friends and family. This is something we can all DO.
Will a petition change anything? There are no guarantees. But we’ve all witnessed what can happen when people combine their efforts for a cause. Do you know of other petitions or ME/CFS efforts that we can lend our support to? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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