...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Change – New Beginnings

9/4/2012

7 Comments

 
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© 2012 TSM
Although the official beginning of Fall will arrive on the Autumnal Equinox, the days after the long Labor Day weekend and the sighting of a morning school bus bring on the feel of the changing season.  Although some of us would enjoy an extra week or two of August weather, it’s time.  And nature reinforces that with the cooler nights and comfortable daytime temps.  When I was first sick with ME/CFS, I would grind on myself about another season come and gone – wasted – while I languished in bed.  I was still caught up in the desperate search to find someone who could cure me.

Then I finally began to realize that there wasn’t a silver bullet – even now, I’m sad that there isn’t – and that I needed a new approach.  A change - A new beginning.  I had been doing the same things over and over again and expecting a different outcome – I believe that’s the definition of insanity.  And yes, anyone would get a little insane if they knew they were physically ill but no one could or would provide some answers.

Many of us find change to be outside of our comfort zones.  But change is the way forward for many of life’s challenges.  ME/CFS is no exception.  It wasn’t until I took a hard look at myself and my specific version of ME/CFS that I began to heal and work my way back to full health.

What change will you bring to your approach to ME/CFS?  What new strategies will you add to your daily regimen?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

7 Comments
pat servia
9/4/2012 06:50:31 am

Hi Martha,
I love you're weekly words of wisdom. This is my one year anniversary of bottoming out with energy. As I just finished my favorite yoga class, did housework and am enjoying LIFE, I am so grateful for renewed health. It was the most frightening and down time of my life. I have made wise choices and had fortunate opportunities to work less and with less stress. I have focused on pacing and nutrition and sun and feel so full of energy. The body can heal. I am a believer that feeling exhausted is real and can be cured.
I can't imagine having felt like I did when my son was a baby. I am happy for your ability to so enjoy your great niece. You are a kindred spirit.

Reply
Martha
9/4/2012 07:38:39 am

Pat, It's wonderful to hear that you are doing so well! And the pacing and wise choices are critical to regaining your health. I am a firm believer that if we take our time and stick to the plan and avoid jumping ahead even though we're feeling better, that ME/CFS patients can recover. Not just 'live well' with the disease but fully recover. That said, for many of us who have been through this cruel nightmare, living consistently well without pushing and crashing feels great. Stay at that level as long as you need to be sure you're ready for the next steps. Congrats!

Reply
OM
9/4/2012 07:20:38 am

I change to whatever I find that helps me to feel better and it is working. Finally accepted living within the limitations of this illness instead of continually pushing the envelope and crashing Also add supplements from Dr Enlander
www.drenlander.com about 6 months ago and more recently LDN which gave me an additional energy boost and sense of well being. Haven't had a relapse in 6 months and am able to see my friends again as long as I rest for an hour afterward and take many days off in between. It isn't the way I used to be but it is much better than i have been in a long time. If I learn of something else that would help I will not hesitate to change that too. Wishing everyone the best possible health and healing.

Reply
Martha
9/4/2012 07:46:30 am

OM, I am so happy for you that you haven't had a relapse in 6 months! It's a great milestone. And it sounds as if you have found the right pace to get some of your normal life back. Continue to take it easy and stay at this stage for a while. I know that the temptation is strong as I had fallen victim to that urge. Stay the course and continue to be smart. Great news!

Reply
OM
9/4/2012 08:34:15 am

Martha, Thank you for your encouragement and good advice. I will do as you suggest. It is working!

Deborah
9/4/2012 12:32:18 pm

It is encouraging to read about people who have had cfs and who are getting better. I have been dealing with this devastating illness for twenty five years. There was a time that I was able to do much more, however since I went through menopause it has gotten worse. I do pace myself and fortunately have energy in the morning to take care of my pets, house and meditation. I wish that I had the hopeful stories that most of you do but I find it encouraging to know that some people get better. I am curious if anyone has been ill as long as myself and gotten better? Thanks for listening.

Reply
Martha
9/4/2012 05:33:28 pm

Deborah,
I have been contacted by several patients who have been suffering for two decades or more. But most have been dealing with ME/CFS for a shorter time. I can only encourage you to learn as much as you can about your own patterns and to continue pacing. Thanks for joining the conversation!

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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