...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Energy – Intermittent

10/30/2012

2 Comments

 
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© 2012 TSM
Hurricane Sandy has swept up the east coast and I hope that all of you in her path were safe and able to ride out the storm.  Although the after effects will continue to create stormy conditions, the riskiest phase is past.  We now have our power back for good.  During the height of the storm we lost and regained our power intermittently for about 5 hours.  And it created uncertainly that kept resolving and then degrading over and over.  It reminded me of how my energy waffled during my early struggle with ME/CFS.

Some days I couldn’t walk across the room without pain and exhaustion.  Then, miraculously, the next day I could walk down stairs and even wash dishes feeling energized and ‘normal’.  Of course the next day, I struggled just to find the energy to sit up and eat.  Then I would feel decent for two days.  Then a crash.  The negative cycle repeated over and over.  It was beyond frustrating, it was infuriating.  And I felt helpless and victimized.  No one had any answers.

The intermittent energy felt by every patient who struggles with ME/CFS makes it a cruel disease.  When I finally started taking control of my energy expenditures, I began the path to recovery.  How do you keep your energy levels consistent?  What are your strategies?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
Tim Boland
11/1/2012 02:56:36 pm

As I have gone through various stages of this illness, Martha, I have become better at feeling and realizing 'I am tired' and instead of ignoring those feelings, as many of us very motivated people do, I am getting better at just stopping, resting in my easy chair. Often in a half an hour or an hour, or after a nap, I will feel more energy.

In some ways, it is like when I was fully well, except then often I would push beyond what felt good in my body and mind. Perhaps we can learn from the Greek people, those who still live in a more traditional way, and some people on a Japanese island who are also said to live very long lives.

Something which struck me as strange when I was in Idaho, as a few neighbors in their 60s, when I made a little joke about living to be 90 or 100, said 'oh, I don't want to live that long'! And these are people who live comfortable lives, with relatively good health.

On that Japanese island, when asked about their longevity, an answer heard was 'harmony'. Perhaps I can also add ‘appreciation’.

Reply
Martha
11/2/2012 01:59:06 am

Tim, I am with you as I also hope to make 90 or 100 :) And even as a healthy person, knowing my energy levels and choosing what to spend them on will be important to my success. Thanks!

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    Hello,  I'm
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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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