In the last two weeks I have been on a whirlwind of travel: A wedding, a graduation, an engagement party, a baby shower, an annual family gathering, a retreat for my daughters friends and finally some quality time together for my immediate family. When I finally sat down at my computer on Sunday, it all seemed like a blur. I could hardly recount the details of the elapsed time. And of course I began to think about the ever present brain fog that plagued me when I was struggling with ME/CFS.
During that time, my brain felt like a thick brick on the verge of succumbing to a two week flu. But I just remained in that state for month after month until a year had passed and more. My agility with numbers was lost. My train of thought in conversations was non existent. And most importantly my sense of time, of lost hours, of routine, of reality was fiction. I came to realize that I couldn’t count on my recall of even the past few days let alone weeks or months. After spending a lot of time in denial of this, I finally admitted to my lack of reliable memory. This realization came at about the same time that I decided that the only way for me to get better was to figure it out myself – a case study of one. So I began, at first reluctantly, to write things down. But as the data grew, day by day, into weeks and then months, it was hard to deny. There it was on the page. A life that I knew was a correct description but not one that I could have remembered on my own.
Writing it all down in a daily health record was the beginning of my return to health. And also the end of my denial that my brain fog was a hindrance. How does your brain fog affect your struggle with ME/CFS? What are your strategies? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
During that time, my brain felt like a thick brick on the verge of succumbing to a two week flu. But I just remained in that state for month after month until a year had passed and more. My agility with numbers was lost. My train of thought in conversations was non existent. And most importantly my sense of time, of lost hours, of routine, of reality was fiction. I came to realize that I couldn’t count on my recall of even the past few days let alone weeks or months. After spending a lot of time in denial of this, I finally admitted to my lack of reliable memory. This realization came at about the same time that I decided that the only way for me to get better was to figure it out myself – a case study of one. So I began, at first reluctantly, to write things down. But as the data grew, day by day, into weeks and then months, it was hard to deny. There it was on the page. A life that I knew was a correct description but not one that I could have remembered on my own.
Writing it all down in a daily health record was the beginning of my return to health. And also the end of my denial that my brain fog was a hindrance. How does your brain fog affect your struggle with ME/CFS? What are your strategies? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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