...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Gifts – Better Days

4/24/2018

3 Comments

 
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I live in New England where this winter has been weird – warm when it’s supposed to be cold then cold when we expect it to be warm.  I’ve had mixed feelings about it.  I love the coziness of a cold winter - but not the hassle of storms and hazardous travel.  I think most of us are done and ready for spring.
 
This week we’ve finally had some sunny warm days that reached above 60.  I went for a walk and felt all the usual stirrings of spring.  Of course, I knew that it wasn’t here to stay but the taste of it was enticing.  I remembered back to my ME/CFS years when after a period of intentional good behavior, doing everything I knew about how to get well, I had a really good day.  It was so enticing then to start my old life back – to forego all that I had learned in the hope that this was it.  It was a gift of one day that could reinforce all my intentions to stay the course or lure me into a false sense of full wellness.
 
Several times I was suckered in by the gift.  But after a few bad turns I got it.  By comparison it put so much in perspective.  So this is what it feels like to be better and feeling strong!  So just as I know that the 60 degree day is only a reminder of the spring to come, back then I had to avoid the pitfall of a wonderful gift of a better ME/CFS day.  Revel in its potential to be repeated more often and stay the course of pacing.

 ​
How have you reacted to these gifted days?  Please COMMENT or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha

3 Comments
Tim Boland
4/29/2018 05:45:29 pm

What an excellent blog, Martha. For me yesterday was a good day, less pain and numbness. Then I think just from sleeping with neck not quite aligned, I woke up today with more soreness than yesterday. I did something which I have been trying to cut back on, my daytime medication but then as noon approached, I remembered that so often my medication dose is small as it is, and I should give myself the gift of feeling better this afternoon.

For me, when I take this medication, it helps the pain ease off and as that does so, so does my mood improve and I tend to move more freely and easily, which helps even more to relax my muscles which in turn helps alleviate pain.

One thing this illness does (and I will be thankful not to have it anymore, please!), for me, is to become more continually aware of my body, how I am feeling, that if I am getting sore it is ok to get up from the chair typing away to friends online, even if someone may be a little offended that I have disappeared for a while to my easy chair.

I have been able to confide in a few close friends online that I have 'health issues', that I need to alternate activity with rest. Nearly all have been supportive. I tend to refrain from saying exactly what my illness is, as too many upsetting and misinformed 'helping diagnoses' from friends taught me to avoid talking about it too specifically.

Reply
Martha
4/30/2018 09:11:08 am

A perfect example of what may blog was all about. Thanks Tim!

Reply
Tim Boland
5/1/2018 07:18:37 pm

Thanks Martha! You being here for all of us reminds me of the saying that goes with being a postal carrier ... through thick and thin, ice snow and rain, Martha's blogs will arrive to bring better cheer. Ok my poetry could be better, just wanted to let you know that I appreciate you :)


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    Hello,  I'm
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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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