...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Halt – When we had other plans

3/3/2020

2 Comments

 
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Recently we were driving along with a schedule for the day.  Then bang.  We had a tire blow out.  We were able to safely get to the side of road but that one event shot holes in the plan for the day.  As we began to assess the condition of our spare tire and whether all the parts of the jack were in the truck, I was reminded of how ME/CFS suddenly forced me to change my plans.

There I was, tooling along with my life plan and then suddenly – bang – I was so ill that I was bedridden.  And after going through the seemingly endless screening process, I was diagnosed with ME/CFS.  Not great news.

Back on the side of the road, we thought we had everything to change the tire and started in.  Then we realized that the jack crank was missing.  Great – that meant that we had to raise up the car one half turn at a time.  As I knelt by the car, inserting the lug wrench, turning a half turn, removing the lug wrench, moving it back to the other side, then reinserting and turning a half turn – over and over and over – I kept thinking about how ME/CFS required me to invent tools to get well because the normal methods didn’t work.  And getting well was agonizingly slow.  And repetitive.  And repetitive.  And really repetitive.

So having that flat tire abruptly changed my plans and it took more time than it should have because we didn’t have the right tools.  And getting ME/CFS abruptly changed my life plans and it took more time to get well from ME/CFS because we needed to invent the right tools.   What tools are you inventing?  What tools are you learning from others?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for postings on Tuesdays.  And consider being part of the conversation.
Be Well Again,
Martha


2 Comments
Tim Boland
3/3/2020 06:51:09 pm

Your story reminds me Martha of the word 'perseverance'. A few years ago at the onset of this illness, my children bought me a large framed print, it is of a mountain climber precariously hanging on to a cliff face, with that word as the theme.

I am reminded of a time when I was 23-24 years old, at that time my girlfriend and I lived in the San Francisco Bay area. I loved to go before sunset with my camera, looking across the bay to Mount Tamalpais, anticipating the sun setting. I parked and then went down a little hill to a lookout.

I happened to turn around perhaps sensing someone, and saw a man there up above, but as I was entranced with my photography, I stayed a little while and then went back up. That man had let the air out of all four of the tires of my car, and no cell phones then.

Then the police showed up and told me I needed to get my car moved as soon as I could. I had the foresight to have a bicycle pump tire in the trunk and was dismayed they did not offer to help at all. But with perseverance, I was able to get three of the tires pumped up enough with air, feeling by then a bit exhausted. The police had called my girlfriend and she and a friend finally came. My friend set to work pumping up the last tire, and of course then the police, wanting to appear helpful, offered to help too.

It definitely taught me, as I have experienced in my life with other experiences, that I can rely on myself, and sometimes though difficult, there is much we can do if we set our minds to it.

Reply
Martha
3/3/2020 11:08:50 pm

Great story! Perfect Parallel to mine. Perseverance is the key. Just thinking about the bike pump is making me tired. Lol. Thanks Tim!

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    Hello,  I'm
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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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