...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Healing – The Challenging Last Phase

5/18/2021

2 Comments

 
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Just recently I received an email from an ME/CFS patient who has been recovering and has reached a better level of functioning but has stopped progressing.  This is a story that we are all too familiar with.  Many of us have reached that level but can’t seem to get to the next and often last phase of full recovery.  I am not an exception.  I spent several rounds in ‘Almost There’ territory myself.  The first few being miserable failures where I could see and feel the possibility of full recovery and I dashed to what I thought was the sure finish line.  We are all too familiar with that story too.
 
Yes, I crashed and was worse than before each time.  Did I learn from this?  Not at first.  After two of these devastatingly disappointing setbacks, I got the message.  I needed to be as careful and as intentionally paced in the last stretch as I was in the first few when my body’s messages were clearer and easier to read.  It took great restraint to succeed in making a full recovery.  But I made it.
 
There is a prevalent message in the ME/CFS culture that patients have to learn to live with ME/CFS.  According to the accepted mantra, no one fully recovers.  This is SO not true.  Yes, there are many different dis-eases mixed up in our cruel ME/CFS wastebasket diagnosis.  But many patients do fully recover - they just don’t talk about it.  But that’s a topic for another blog.  My point is that the last phase of recovery is so personally challenging.  If it was easy, we’d all be fully well.  It takes even more focused attention and ‘case-study-of-one’ perspective because the clues, symptoms and patterns are much more subtle.

 
Where are you in your recovery?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha


2 Comments
Tim Boland
6/5/2021 11:58:15 pm

I welcome each of your blogs Martha, so often they bring a ray of sunshine as the possibility of recovery is a real one for many of us. This past several months I must confess I overdid, getting a rental home ready for sale was one of the most trying periods of my life.

Now that it is sold and I no longer have any worries about renting it, I should be traveling in about two weeks over to Idaho. My oldest daughter and I will be driving over, I am so looking forward to a real change of scenery and usually it is a period when I can do some serious rest and relaxation.

Reply
Martha
6/7/2021 08:46:40 am

Congratulations Tim on divesting of a big chunk of stress! Glad that you have one less responsibility to manage. Have a wonderful trip to Utah with your daughter.

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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