Most of us have suffered not only with the frustration and illness of ME/CFS but with the non recognition of this disease by the medical community and the people around us. According to them, we don't look that sick and we don't test sick so we aren't physically sick... And when we’re treated that way, we tend to withdraw. Combine that with the physical and mental disability of ME/CFS and it’s a combination that leaves us isolated and ultimately invisible.
And in that isolation, we begin to question our own mental capacity. Do not listen to those negative, degrading messages! You are not alone in this and you are not crazy! Many people are in this ME/CFS boat struggling to be seen and to be well again.
For me, I was able to find a few people who would listen and help. It made me feel visible again. How do you deal with the invisibility of ME/CFS? What works for you? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,