...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Pacing – Protect Part of Your Day

10/1/2019

2 Comments

 
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When you’re struggling to recover from ME/CFS, pacing is one of the most difficult challenges.  It’s too easy to get caught up in the flow of the day and lose control of what you had intended.  We quickly can become victim to over doing and triggering a relapse.  It can be absolutely maddening.  We know what we need to do and not do.  We have planned out the day.  It’s in alignment with the protocol we’re following and we know if we follow the plan then we will have a successful, positive day.

Then the unpredictable, real world seems to take over.  By the late afternoon we’ve either blown the plan to bits or we’re barely on track just hanging on.  And we seem to do this way too often.  OK, we’re human and we can forgive our weaknesses.  But ME/CFS is not forgiving.  ME/CFS is opportunistic and just waiting for an opening to assert itself like an energy gremlin.  So what to do?

One of the strategies I used was to plan my day with built in breaks.  I would sandwich them around the most demanding part of the day and sometimes also right in the middle if need be.   I would have ‘optional’ parts of the day that I could opt out of depending on my energy levels and what else was still required of me.  Essentially, I planned for the unpredictable.  I gave myself space in the day to rest and to do whatever self-care I needed.


How are you pacing for the unpredictable?  What part of your day do you protect?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!
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Look for a weekly posting on Tuesdays.  And consider being part of the conversation.
Be Well Again.
Martha

2 Comments
Rebekah
10/1/2019 09:33:07 am

I have found having down times on either side of activities to be key for me as well. And some things make me more tired than others, so I have to take that into account too. It has literally taken me years to figure out what works best for me, and I still overdo at times. But I have made a lot of progress and it has helped greatly.

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Martha
10/1/2019 09:40:10 am

It took me a long time to figure this out as well. Being strong willed can be helpful in some situations but not with ME/CFS!! Thanks Rebekah!

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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