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ME/CFS Pacing - Truths and Miss Queues

5/8/2012

2 Comments

 
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© 2012 TSM
This spring in New England has been a strange cycle of early prolonged hot weather followed by several weeks of cold, damp weather with a few nights below freezing.  And like most things that respond to warmth and sunlight, I was out in my garden in early March, clearing the flower beds of winter debris.  All of my perennials were sprouted and many already budding out way before their normal timeframe.  Now, after a few frosts, I look about and see damage on many of the flowers and shrubs.  And of course it reminds me of my successes and failures with pacing when I was struggling with ME/CFS.

It was so difficult to recognize the difference between solid progress where I could take the next step toward recovery and a good day which needed to be repeated at the same level for a while.  Of course my hope and emotions were almost always in the ‘this is it’ camp.  Unfortunately, most of the time I needed to stay where I was and follow the protocol until this new level of health was consistently repeated.  In the beginning, I jumped forward and was almost always rewarded with a set back.  Some more severe than others. But over time, I finally began to listen to my body’s call for restraint and to review my daily log for patterns that pointed to whether or not I was ready.

I admit that it took a strong hold on the reins at times when I really wanted to unleash a cantor.  Do you struggle with pacing?  How do you deal with miss queue days?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
Tim B
5/9/2012 03:37:24 pm


I notice that when I listen to my body's signals, and when I'm tired, I need to rest. When I ignore that or put feelings of pain aside, which unfortunately sometimes happens because of pressing work, I will often feel it that day and even the next day. When I to attend to what I am feeling in my body, my body loves it and it generally brings me to a better mood and a more positive attitude too about healing.

Speaking of sunshine, Martha, many people who have CFS and some auto immune difficulties are low in vitamin D. When I go to a sunnier climate like I did last summer and I was out in nature, it did my spirits a lot of good and I felt the sun's rays made a real difference too in my overall health.

Reply
Martha
5/10/2012 12:49:30 am

For me, sitting in the sun for awhile naturally improves my outlook. And the skin is such an amazing organ, I think that on a cellular level, I am absorbing the light and warmth and converting it into energy. I also think that somewhere, lingering in my DNA, is the imprint of a geko sunbathing on a rock. Thanks Tim!

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    Hello,  I'm
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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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