...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Pacing – We Totally Get It

6/5/2018

2 Comments

 
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No matter where you live, you may be aware that New England has been dealing with a conga line of cold, rainy weekends since April.  It has been a record breaking couple of months.  Even the most ‘rain loving’ people around me have had it.  And of course, all of this got me thinking about my struggle with ME/CFS.
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Like many, the depths of my illness dragged on for about four years.  And like many more, it still drags on.  We know what it takes to be in something for the long haul.  To commit to getting better as a lifestyle however limited.  And yes, some of us needed multiple remedial roller coaster rides of push crash cycles – I’m at the front of that line.  But we totally get the patience and pacing it takes to reach a goal – for us wellness.  And we keep at it, day after day, week after week, month after month and year after year.  We are determined to be well again.

This understanding doesn’t entitle me to look down my nose at those around me who are done with the cold and the rain.  But honestly, I do a little – just a smidge.  Yes, I’m tired of it too but I am not complaining.  This is a piece of cake – made of rain - compared to struggling with ME/CFS.


Whenever someone groans about the weather, I listen for a while then smile and say, “Keep Calm and Umbrellas Up”.  Please COMMENT or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha

2 Comments
Tim Boland
6/10/2018 12:48:32 am

As the saying goes, Martha, 'too cool', your website came up in a near blink of the eye. So happy to see that you got the issue addressed.

You are so right about not being too obsessed with the weather, though around here in the Northwest, we have learned to get grateful when the sun does shine, the unique combination of beautiful greenery, blue skies and a shining sun.

I am fortunate to have around me a mini forest, lots of very tall trees, evergreens and big leaf maples. When my illness first came on strongly, I had my bed moved downstairs so that at any hour of the daytime hours, I could look through the near windows and see the trees, the green shrubs.

It is odd and amazing too the sights I saw when first I confined myself to my home, as I looked out my front door one day, quietly, and saw a mother duck with ducklings all in a row behind her, crossing first the driveway, then the lawn and into the forest. Something I have never witnessed since. I also saw small energetic birds flittering around that I haven't really seen in the same way before or since, somehow they sense either the house is uninhabited or perhaps within is someone who is not up to participating.

I know that for many as for myself, being in nature, whether in one's backyard or front yard, at a near park or even watching a YouTube video of a lovely place afar brings hope to the heart. It is important when dealing with illness, to give ourselves temporary moments of happiness, even though it seems there is so little to be happy about.

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Martha Kilcoyne
6/10/2018 10:44:07 am

Love the images of nature around your home. Soothing and enjoyable to observe. Thanks Tim!

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    Hello,  I'm
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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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