Sorry to miss my post last week. I’ve been enjoying one of the rewards I earned by facing the challenge of ME/CFS head on and figuring out my version of this cruel disease. Our family has been traveling and I’ve been keeping up the pace as any healthy person would do. And of course, I’ve thought about my struggle with ME/CFS each and every day - more than once.
My gratitude for being fully recovered is immeasurable. And yes, I was fortunate enough to have the benefit of a strong daily support group. I had the time to devote to figuring out my version. I had the economic safety net. But most of all, I had patience and a focused priority to get well above all else.
For several years, I did nothing but follow the protocol – every minute, every hour, every day, every month till I was sick of it. Till I hated it. Till I wanted to ignore everything that I had learned and just get back into my life. I was sick of watching others live. I was sick of not being who I could be. I was sick of the comments of others. But I fought every normal urge and just kept plugging away at the protocol. Did I ever cheat? In the beginning, of course I did. But it only got me sicker. So when I finally got serious, I stuck with the protocol relentlessly. And that’s when recovery began to slowly happen.
Today, we were running late to catch a train so we had to double time it to get to the station. As I pulled my roller bag along at a fast clip over the sometimes bumpy walkway, I was thinking about how this seemed like a miracle. But it wasn’t. It was the result of lots of sacrifice that on a daily basis I truly hated. But in the long run, It was SO worth it.
My best to all of you and hoping that you have the patience and the priority to find your path back to wellness.
Be Well Again,
Martha
My gratitude for being fully recovered is immeasurable. And yes, I was fortunate enough to have the benefit of a strong daily support group. I had the time to devote to figuring out my version. I had the economic safety net. But most of all, I had patience and a focused priority to get well above all else.
For several years, I did nothing but follow the protocol – every minute, every hour, every day, every month till I was sick of it. Till I hated it. Till I wanted to ignore everything that I had learned and just get back into my life. I was sick of watching others live. I was sick of not being who I could be. I was sick of the comments of others. But I fought every normal urge and just kept plugging away at the protocol. Did I ever cheat? In the beginning, of course I did. But it only got me sicker. So when I finally got serious, I stuck with the protocol relentlessly. And that’s when recovery began to slowly happen.
Today, we were running late to catch a train so we had to double time it to get to the station. As I pulled my roller bag along at a fast clip over the sometimes bumpy walkway, I was thinking about how this seemed like a miracle. But it wasn’t. It was the result of lots of sacrifice that on a daily basis I truly hated. But in the long run, It was SO worth it.
My best to all of you and hoping that you have the patience and the priority to find your path back to wellness.
Be Well Again,
Martha
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