...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Recovery – Take Control

2/27/2018

2 Comments

 
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Have you had the experience of being introduced to a new perspective or way of looking at something and then suddenly you see it everywhere?  Is it something new that’s popping up everywhere or had it been there all the time?  Is it you who has changed by being aware or more open?  From my own experience, I think it’s me.  And when I truly grasp a new perspective, it seems to apply to everything.

My latest perspective is about control versus out of control.  So much of our lives are controlled from somewhere else.  But there is much that we can control.  Not everything and not all of a certain thing, but there is much that we can tweak, reinforce and push for.  Lately I’ve heard many people express to me and wring their hands about how things are happening in their lives.  And they take the perspective that they are at the mercy of whatever it is.  And as I hear this, my mind is saying take control.  Make some intentional changes and be proactive.  And of course it’s gotten me thinking about my struggle with ME/CFS.

At first, I turned over control of my illness to my doctors.  But after much wasted time and energy, I finally admitted to myself that not only did they not have the answers, they ultimately just didn’t get it.  A few were compassionate but that just felt good.  It didn’t get me well.  Finally I started to carve out pieces that I could control.  I was sick of being sick and I was sick of getting nowhere.  So, even though I wasn’t convinced that I really could change my SEID/CFS illness, I was so ticked off about having no answers to this cruel disease that I just started recording and tweaking.  Recording and tweaking.  Recording and tweaking ad nauseum.

So I just took action.  I didn’t know what I was doing.  But I was doing and it felt good.  Would I get anywhere?  I didn’t know but it felt better exerting some control.  Eventually it became my path back to wellness but I didn’t know that when I started.  I just needed to take some control.  And it was good for my mental health.  Are you taking some control of your version of ME/CFS?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome.

Look for my next posting on Tuesday, March 13th.  And consider being part of the conversation.
Be Well Again,
Martha


2 Comments
Tim Boland
3/4/2018 10:32:14 pm

It was funny as I went to enter my name, and another entry came up for my Amazon shopping, Tim's Wish List where our computer remember some former entry.

My wish list, Martha, is of course first and foremost a return to wellness. And I agree, as you advised in the past, this must be something we do pro actively, which means to actively work toward achieving that result.

I don't think I was so aware of it in the beginning, as I spent more and more time just 'relaxing', watching movies and alot of TV, and having others do many things that likely I could have done. I became very frustrated when my daughters did not show up when they said they would, to help in ways I really need help. I became exasperated to the point where I started doing my own accounting more, a necessity in my business, got caught up on my taxes though this was stressful for all the effort required.

I think like many who have CFS or fibro or a similar illness, we have had the drive to 'take control' in so many situations and becoming ill does produce feelings of depression, a feeling of not being in control and yes, even despair at times. Like you, I just got tired of having to wait for others.

Today I am much more sore and achy than usual, the result of not sleeping too well. And I realized I have not been taking that warm shower right before going to sleep, as I almost always did in the past, and it does make a difference. If I sleep well, the following day is usually a much better day with much less pain. And I know that is something I can control, as I can many other small and bigger choices which I make each day.

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Martha
3/4/2018 11:00:14 pm

Small and big choices that we make each day. Well said Tim. Thanks!

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    Hello,  I'm
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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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