...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
  • Home
  • About
    • This Site
    • Martha
  • Participate
  • Contact
    • Contact Form
    • Submissions
  • Links
  • Book
  • Further Lessons
  • Thanks

ME/CFS Repetition – Keep Your Sanity

7/5/2022

4 Comments

 
Picture
This summer in New England has seen a lot of hot weather.  It hasn’t been two or three days in a row.  It’s been a long conga line of hot dry days.  Day after day and week after week.  And it’s only the second week in July.  I can’t remember the last time we had a good long rain.  I’m not an AC lover but it’s been on almost constantly.  And inevitably when I get into drawn out repetitive situations, I think about my struggle with ME/CFS.

When I finally quit riding the roller coaster after two brutal years and settled into the protocol, it was a long, repetitive, frustrating path.  Whenever I looked forward, the repetition seemed to spread out endlessly before me.  Like this long hot summer, it didn’t seem like it would ever end.  I had to find the courage to settle in.  I needed to take it a day at a time.  I needed to stick with the recovery plan and work it every day.  Honestly, I couldn’t think about how slow the pace was because it drove me crazy.  Much like this summer, I don’t think about how many more hot days are coming.  I take it day by day.  Right now, there’s another gorgeous sunny day outside my windows.  The kind I hoped for in the dead of winter.


My best days of dealing with the slow repetitious pace were when I looked over my health log and saw the real progress.  I was slowly making my way back to full health.  And the proof was right there written in black and white.  It was a balm for my sanity.  Are you on the slow, repetitious path that the protocol requires?  What helps you stay sane?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.
Be Well Again,
Martha

4 Comments
Tim Boland
7/9/2022 08:35:28 pm

Thank you Martha for an inspiring column. It is hard sometimes to keep our spirits up when faced with illness. As the weather has gotten nice here, I have been taking a morning walk nearly every day. After I do, I am a little fatigued but I can feel that my body appreciates it and when I walk more often, I feel more fluid in my movements.

Also I have a list each day of things I hope to accomplish, mainly relating to business. If I feel too tired to complete everything in that day, I will just move it to the next day. It helps to journal too about my feelings, and it's easier when using a file that is on my computer. I know I need to continue with my health journal, too.

Reply
Martha
7/11/2022 10:03:25 am

I too am walking each morning as a good start to my mostly computer anchored day. For me, it's physical and mental exercise. And the organized To Do list is a perennial for me as well. Mostly a guideline not a requirement. Thanks for the good reminders Tim!.

Reply
Julie Lee
8/8/2022 10:37:18 pm

After managing a month of additional health challenges,including Covid,l am being mindful of how much stress my body has been under.Mentally and emotionally l am feeling a bit battered.Taking care of myself is paramount as l strive to manage energy level deficits that are a part of Fibromyalgia.Being kind to myself and setting boundaries on the demands from others is a work in progress and a learning opportunity.Thank you Martha.

Reply
martha
8/8/2022 11:54:01 pm

Julie, it sounds like you've had a tough stretch of struggling with Fibro and covid as well as other health issues. Despite all that, you have a coping mindset and that is a fabulous strength. My favorite word you use is Kind. I think we often lose perspective on kindness especially as it relates to how we treat ourselves. We often neglect to be kind to ourselves because we're made to see that as selfish. The opposite is true. Thanks Julie!

Reply

Your comment will be posted after it is approved.


Leave a Reply.

    Picture
    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

      Join Our Community
      Enter your email address to
      follow this blog.

    Join

    For Books, Supplements, Sleep aids and more

    Picture

    Archives

    December 2022
    October 2022
    September 2022
    August 2022
    July 2022
    June 2022
    May 2022
    April 2022
    March 2022
    February 2022
    January 2022
    December 2021
    November 2021
    September 2021
    August 2021
    July 2021
    June 2021
    May 2021
    April 2021
    March 2021
    February 2021
    January 2021
    December 2020
    November 2020
    October 2020
    September 2020
    August 2020
    July 2020
    June 2020
    May 2020
    April 2020
    March 2020
    February 2020
    January 2020
    December 2019
    November 2019
    October 2019
    September 2019
    August 2019
    July 2019
    June 2019
    May 2019
    April 2019
    March 2019
    February 2019
    January 2019
    December 2018
    November 2018
    October 2018
    September 2018
    August 2018
    July 2018
    June 2018
    May 2018
    April 2018
    March 2018
    February 2018
    January 2018
    December 2017
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015
    January 2015
    December 2014
    November 2014
    October 2014
    September 2014
    August 2014
    July 2014
    June 2014
    May 2014
    April 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    September 2013
    August 2013
    July 2013
    June 2013
    May 2013
    April 2013
    March 2013
    February 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    August 2012
    July 2012
    June 2012
    May 2012
    April 2012
    March 2012
    February 2012
    January 2012
    December 2011
    November 2011
    October 2011
    September 2011
    August 2011
    July 2011

    Categories

    All
    Appreciation
    Attitude
    Being Positive
    Brain Fog
    Choices
    Community
    Connect
    Coping
    Data
    Diagnosis
    Doctor
    Emotions
    Energy
    First
    Food
    Funding
    Genetics
    Goals
    Gratitude
    Groups
    Guest Blog
    Gut Feelings
    Health
    Helping
    Holidays
    Hope
    Humor
    Immune Support
    Inner Voice
    Ion Channelopathy
    Irony
    Isolation
    Journal
    Log
    Mantra
    Memory
    Mind
    Negativity
    Nutrition
    Opinions
    Organizations
    Outlook
    Pace
    Participate
    Patience
    Patterns
    Personality
    Perspective
    Protocol
    Provider
    Pushing Too Hard
    Pushing Too Hard
    Record
    Recovery
    Relapses
    Research
    Resolutions
    Rest
    Sleep Depravation
    Step By Step
    Step By Step
    Strategies
    Supplements
    Support
    Take Control
    Take Control
    Thankfulness
    Vacation
    Variables
    Version

    RSS Feed

    Picture
    Copyright © 2011-2012
    Triple Spiral MEDIA LLC