At the depths of my struggle, this monotonous routine required me to take a two hour nap twice a day. Full disclosure – I HATE naps. I haven’t napped since I was a toddler. Even then, I am told I was uncooperative during nap time. For whatever reason, unless I am sick or just come off an all nighter, I am not tired during the day. Daytime bed rest is like jail for me. So my monotonous routine required monotonous bed rest. Even if I wasn’t sleeping, I had to be in bed with my eyes closed. Yeah, monotonous. Sometimes it seemed to take an eternity to get to the end of a day. And what was my reward? Bed rest. Monotonous bed rest.
And as my energy started to return, it was even MORE monotonous still following the napping and resting routine. But it worked. It all paid off. So as you study your patterns and find the clues to your version of ME/CFS, find a way to manage the monotony of repetitious days. How do you manage the monotony? What are your strategies? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,