...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS Routine – Each and Every Day After Day

2/12/2013

2 Comments

 
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© 2013 TSM
If I had to pick one word that would describe my successful return to health after struggling with ME/CFS, it would be monotonous.  Daily record, energy patterns and attitude are close seconds but ultimately the best word is monotonous.  Did I mention monotonous?  It was SO monotonous.  Day after day monotonous.  Are you starting to feel it?  Tedious, lacking in variety, repetitious, monotonous.  The same routine every day.  Monotonous day after monotonous day.

At the depths of my struggle, this monotonous routine required me to take a two hour nap twice a day.  Full disclosure – I HATE naps.  I haven’t napped since I was a toddler.  Even then, I am told I was uncooperative during nap time.  For whatever reason, unless I am sick or just come off an all nighter, I am not tired during the day.  Daytime bed rest is like jail for me.  So my monotonous routine required monotonous bed rest.  Even if I wasn’t sleeping, I had to be in bed with my eyes closed.  Yeah, monotonous. 
Sometimes it seemed to take an eternity to get to the end of a day.  And what was my reward?  Bed rest.  Monotonous bed rest.

And as my energy started to return, it was even MORE monotonous still following the napping and resting routine.  But it worked.  It all paid off.  So as you study your patterns and find the clues to your version of ME/CFS, find a way to manage the monotony of repetitious days.  How do you manage the monotony?  What are your strategies?  Please COMMENT or Send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
Tim Boland
2/17/2013 01:21:37 pm

As far as naps go, this is one area which where we differ, Martha. I started taking naps regularly at about age 27, as I'd injured my knees with construction work and it felt like the best thing to do. Since I became ill with CFS, it was initially very hard to take naps because of nagging, low level pain. So over the past few months, I have finally learned to have more restful naps, though sometimes that just means quietly resting.

Today was a good day, I've been feeling a lot of business pressure so just did my best to let it go, then relaxing and resting, I feel a real difference after rest, just more invigorated. At this point in my recovery, I am willing to put up with monotony as when I baby my body, I feel real benefits .... and often more hope too.

Reply
Martha
2/17/2013 11:14:43 pm

As much as I disliked the monotony of rest, it was a key part of my recovery and as that understanding finally clicked, I gained patience for rest. My body always felt stronger and healthier after rest and the cumulative effect was reaffirming. Thanks Tim!

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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