Since my mother isn’t internet savvy, there was no web connection in her home. After a couple of days, I was feeling isolated. After I week, it seemed like I was in Antarctica except for the sweltering heat and humidity outside. Of course I began to think about my struggle with ME/CFS/Fibro and how isolating it was especially in the mid nineties when personal daily use of the internet was in its infancy. Now it’s a blessing to have so much information and community available without requiring a huge expenditure of energy. Even half an hour or an hour a day can give a housebound ME/CFS/Fibro sufferer a link to family, friends, work and the greater ME/CFS/Fibro community. If you’re not reaching out to stay connected, start today. When you’re sick, an important part of your support network is encouragement and knowing that people who care are thinking of you. And the resources on the web about ME/CFS/Fibro can be transformational as well as informative.
After spending time with my mother, she has determined that it’s time for her to come north again where she has more support. We’re both back in New England now. She will be staying with me for a few months and then my sister as we figure out a plan for her going forward. She knows she’ll do better where she has less isolation and a built in support group. We’re pleased that she recognized this on her own.
And as our family takes on this new living arrangement with two generations under the same roof, I’m making sure that I’m connected to my friends and community for support. How are you staying connected with family, friends and the ME/CFS/Fibro resources on the Web? What strategies keep you connected? Please COMMENT or Send in your thoughts and I’ll post them. You can use the Contact Form or send an email to Martha at DefeatCFS dot net.
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,