As so often in your blogs, Martha, I see references to self-care, how discipline and staying with it consistently are of such vital importance.
I had a very distressing time at my doctors, and without going into details, it prompted me to Google something like 'what to do when your doctor does not listen'. I gained much insight by the experience of others, reading in one article that on average, if a patient speaks up he/she is interrupted by the doctor after only 17 seconds!
Mine is especially bad at listening, to the point where even the thought of going to see him is stressful, and as many of us know, more stress leads to tightening of our muscles, and that tightening increases our pain levels.
I share these links as they speak directly to what to do if you physician is not listening, if you do not feel respected, and some possibilities.
http://www.thewebelongproject.com/blog/advocating-for-yourself
http://www.webmd.com/a-to-z-guides/features/be-heard#1
Tim Boland
Thanks Tim! Unfortunately, it is a challenge to find a doctor who is knowledgeable about ME/CFS/SEID. Or even simply one who believes that we are physically ill and who works with us and listens to help us unravel our version of it. What have your experiences been? Please COMMENT or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
I had a very distressing time at my doctors, and without going into details, it prompted me to Google something like 'what to do when your doctor does not listen'. I gained much insight by the experience of others, reading in one article that on average, if a patient speaks up he/she is interrupted by the doctor after only 17 seconds!
Mine is especially bad at listening, to the point where even the thought of going to see him is stressful, and as many of us know, more stress leads to tightening of our muscles, and that tightening increases our pain levels.
I share these links as they speak directly to what to do if you physician is not listening, if you do not feel respected, and some possibilities.
http://www.thewebelongproject.com/blog/advocating-for-yourself
http://www.webmd.com/a-to-z-guides/features/be-heard#1
Tim Boland
Thanks Tim! Unfortunately, it is a challenge to find a doctor who is knowledgeable about ME/CFS/SEID. Or even simply one who believes that we are physically ill and who works with us and listens to help us unravel our version of it. What have your experiences been? Please COMMENT or Send in your thoughts and I’ll post them with your permission. You can use the Contact Form or send an email to Martha at DefeatCFS dot net. And Guest Blogs are most welcome!
Look for a weekly posting on Tuesdays. And consider being part of the conversation.
Be Well Again,
Martha
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