...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS/SEID Out of Power – Patients Get It

2/21/2017

2 Comments

 
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We recently lost our power for two days and it took a while to get things back to normal after the power was restored.  During the outage, I was thinking about how we often take for granted the watts that invisibly supply the energy we have come to depend on to power our lights, heat, refrigeration and cooking.  We don’t really think about the mechanics of how it’s produced, delivered and consumed.  It reminded me of how I lived before I was sick with ME/CFS/SEID.  I gave little thought to how my body generated energy, delivered it to my cells and how I, at times, recklessly consumed it as if there was no limit.  My type A personality was go, go, go even when I had colds or the flu.  That changed abruptly when I came down with ME/CFS/SEID.
 
Now that I am well, my first thoughts are still focused on whether or not I have the energy to take on what has been set before me.  Sometimes it’s a choice.  Often it’s a responsibility.  And I am cautious to evaluate what I can handle and under what conditions I can do it.  I’m especially clued into looking for partners to help get something done.  I had learned the hard way when I was recovering from ME/CFS/SEID that the final task of simply carrying the heavy bags into the kitchen from the car and putting the food away could be the tipping point that turned an otherwise successful trip to the grocery store into a ME/CFS/SEID setback.

 
What have you learned about your ‘energy envelope’?  How do you keep your urge to go, go, go in check?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha


2 Comments
Tim Boland
2/28/2017 12:26:48 am

Thank you Martha for this reminder of something my mother said many times to me 'patience is a virtue'. Sometimes this illness sorely tests my patience. I know what you mean about managing our energy reserves.

I tend to tense up now more with tension, as this creates muscle pain which does not relax away so easily as before, often though spending just 15-20 minutes in my reclining easy chair brings much needed rest and getting off my feet. It becomes easier as I go to see those things which truly help. Harder though at times to see what does not help, as sometimes those symptoms may not appear for hours or until the next day. How did you learn to spot and analyze what was not so good for you?

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Martha
2/28/2017 10:59:27 am

What a great opening to drag out my soapbox! How did I find the connections between activities that triggered bad days and the actual bad days that sometimes followed a few days after? My daily health and activity log pointed to the problems. They're hard to see otherwise. It's worth 5 minutes everyday to record how you're doing. A gold mine of data. Thanks Tim!!

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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