...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS/SEID Recovery – Challenge and Reward

6/7/2016

2 Comments

 
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I’ve been enjoying one of the rewards I earned by facing the challenge of ME/CFS/SEID head on and figuring out my version of this cruel disease. I’ve been taking on large garden projects which require digging, hauling and mulching.  And I’ve been able to handle the physical work as any healthy person would do.  And of course, I’ve thought about my struggle with ME/CFS/SEID each and every day - more than once.

My gratitude for being fully recovered is immeasurable.  And yes, I was fortunate enough to have the benefit of a strong daily support group.  I had the time to devote to figuring out my version.  I had the economic safety net.  But most of all, I had patience and a focused priority to get well above all else.

For several years, I did nothing but follow the protocol – every minute, every hour, every day, every month till I was sick of it.  Till I hated it.  Till I wanted to ignore everything that I had learned and just get back into my life.  I was sick of watching others live.  I was sick of not being who I could be.  I was sick of the comments of others.  But I fought every normal urge and just kept plugging away at the protocol.  Did I ever cheat?  In the beginning, of course I did.  But it only got me sicker.  So when I finally got serious, I stuck with the protocol relentlessly.  And that’s when recovery began to slowly happen.

Yesterday, I planted two new rose bushes.  I was a sweaty mess covered with a layer of dirt and I was thinking about how this seemed like a miracle.  But it wasn’t.  It was the result of lots of sacrifice that on a daily basis I truly hated.  But in the long run, it was SO worth it.  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.


Be Well Again,
Martha

2 Comments
Tim Boland
6/13/2016 10:18:47 pm

I like very much one of your final statements, Martha ... 'But in the long run, it was SO worth it'. I have been paying even more attention to how my body is feeling, what different levels and kinds of activity do.

I also did something special for myself, which at first may not seem a big deal. I had an older recliner which had just outlived its years and I could feel that my body was more sore and uncomfortable in it as time passed. I bought a new power chair from a US based company called Golden. I saw it in a medical supply store, and bought the MaxiComfort Cloud, cloud meaning that it has extra padding, but it has a medium firm feel to it and it is really comfortable. It has a remote where you can use presets like Recline and even one for Sleep.

I listed the one I'd had on Craigslist for free and a man who amazingly had this same kind of chair for years before it stopped working, and he was so grateful for the chair I had, which he will use until he can buy another Golden chair. I can already feel the difference it is making as I can nap in it during the day, I sense it is already helpful with my pain level as I use it while watching tv or listening to music. For those interested, their website is http://www.goldentech.com/lift-chairs/.

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Martha
6/14/2016 05:45:31 pm

Now that is self care. Go Tim!

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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