...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS/SEID Recovery – It Takes Some Dedicated Time

8/9/2016

2 Comments

 
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Every once in a while, I drag out my soap box….  Here I go….

I frequently receive emails from people who have been struggling with ME/CFS/SEID for way too long.  This is such a cruel disease.  And I know that everyone’s situation is different with demands and responsibilities.  But recovery from ME/CFS/SEID, at least for me, came at a price.   A very high price.   I literally gave up two years of my life in order to recover.  And, as you already know, I hated every minute of it up until I started to taste how it used to feel to be well.  And when I got that taste, I had hope that I could recover.  Full disclose:  I had to repeat that ‘first taste’ experience three times before I fully understood what I needed to do next which was nothing.

I needed to stick with the protocol and rest.  I needed to stay right where I was and continue to do all the self-care that has gotten me that far.  And that’s when I truly began to hate the protocol.  As I felt better and better, I continued with the restrictive protocol.  Ad nauseam.


So here are my questions to you.  How long have you been struggling with ME/CFS/SEID?  What quality of life are you living?  Is there any way that you could arrange your life so you could dedicate one year to only being a Patient?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha

2 Comments
Tim Boland
8/13/2016 01:02:51 am

Your blogs help so much Martha, to 'keep my eye on the goal'. I have made some significant improvements in my life by just staying with it, not giving up. Each day I awaken with a sense of hope, and seeing what helps and what does not.

I am doing far more than I was three years ago, unfortunately some out of 'necessity' because of the nature of the business I own. But my body reminds me when I am becoming very sore, or quite irritable, that just relaxing deeply sometimes for as little as twenty minutes, well I can feel a difference. That tells me that my body does respond to my taking care of myself.

Reply
Martha
8/13/2016 05:45:10 pm

Tim, I think we can all see the significant improvements that you've made since you joined this conversation. You get it. And you've been rewarded for your focus and patience for self care. Congrats and many thanks for sharing your wellness journey with us!

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    Hello,  I'm
    Martha Kilcoyne

    Welcome
     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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