...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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ME/CFS/SEID Struggle – Work Every Hour

6/28/2016

2 Comments

 
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Full disclosure – I have been a Boston Red Sox fan since I was a little girl.  I have no idea why the game captured my imagination so young but I got hooked and still am.  Like many of the devout, I am used to the highs and lows of my team.  Right now, we’re doing well.  And of course I’ve been watching the post-game interviews.  Without exception the players repeat the same mantra – work every pitch.  They remind me of my struggle with ME/CFS/SEID and how I was able to regain my full health.

Like the Red Sox who have approached this entire season with focus on “Every pitch, every out, every inning, every game”, I finally understood after two years of crazy push/crash cycles that I needed to bring my struggle with ME/CFS/SEID to “Every hour, every day, every week, every month.”  If I intended to be well again, I needed focus – consistent, every hour focus.
I needed to bring my struggle into the moment and make it the most important factor that effected each decision – everything had to be viewed through the window of my goal to regain my health.  And yes, I was blessed with the opportunity to make ME/CFS/SEID my focus every hour.  But it was not without deep sacrifices for me and for my loved ones.  This path is hard and long.  Some days seemed endless.  Some days I lost ground and some days I gained.

And like the Red Sox who went from last to first in one year with pitch by pitch focus, I regained my health in two years with hour by hour focus.  How are you bringing your struggle with ME/CFS/SEID into each hour of each day?  Please COMMENT or send in your thoughts and I’ll post them.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,
Martha
Go Sox!

2 Comments
Tim Boland
7/2/2016 08:51:22 pm

I learned lessons as well, Martha, from sports I've played and enjoyed, golf, tennis and bowling. It's easy to become discouraged, to 'give up' but we can learn from our 'mistakes', the biggest ones I've committed were not listening to my own inner intuitive voice.

As you say, with sports we can learn discipline, to find out what is working for us and what is not. To get into that groove, the flow of health ... how is that for a good way of thinking about it? :)

Reply
martha
7/3/2016 09:37:37 am

Sounds like a home run to me. Thanks Tim!

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    Hello,  I'm
    Martha Kilcoyne

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    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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