...DEFEAT Chronic Fatigue Syndrome: ...............................................................You don't have to live with it
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SEID/CFS Struggle – Don’t Be a Victim

6/9/2015

2 Comments

 
Picture© 2015 TSM
When I first contracted SEID/CFS, I thought my illness would be short lived.  It came on like the flu, it felt like the flu and I was sure that after a couple awful weeks, I would recover just like all the other flus I’d had.  Lots of people around me were suffering with the same flu.  Many people were laid up for a couple weeks just like me.  But as I watched them recover and go back to work and their lives, I didn’t get better.  And over time, as I attempted to get my life back to normal, I got worse.

It was easy at the time to question, “How come I’m not getting any better?”  “Why did this happen to me and not anybody else?”  As time went by, after many visits to different doctors, without getting any answers, I began to feel like the victim of a terrible hoax.  I kept thinking that any day now, I’ll wake up and the nightmare would be over.

I developed a perspective that I had nothing to do with getting sick with SEID/CFS and I had no means within my control to get better.  And I admit that I was feeling that way for a long time.  I was trapped in the scenario that I was a victim and that I had no options other than suffering.  My future seemed outside of my control.

Fortunately there was a quiet yet consistent voice inside of me that kept saying. “This isn’t you.”  And it was right.  I could no more give up complete control of my life than I could quit breathing.  There had to be some part of this nightmare that I could work with – that I could control.  Something that I could personally take on in order to get better.

And that was the beginning of an attitude shift that put me on the path to wellness.  What parts of your struggle with SEID/CFS do you control?  Please COMMENT on this blog or Send in your thoughts and I’ll post them with your permission.  You can use the Contact Form or send an email to Martha at DefeatCFS dot net.  And Guest Blogs are most welcome!

Look for a weekly posting on Tuesdays.  And consider being part of the conversation.

Be Well Again,

Martha

2 Comments
Donna
6/12/2015 08:40:04 pm

I sometimes feel victimized by my illness; so little seems within my control. I had to really think about the changes that I've made from the beginning of ME/CFS to the present. But, there's been a lot. I've learned to love myself, in spite of being brought up that production equals self-worth. I've learned to stress over less, to prioritize. I eat nutritious foods on a more consistent schedule. Thanks to you, Martha, I've made rest and sleep more of a priority. So, my roller coaster ride of ups and downs is less; my day-to-day tends to be more balanced. I've had to let go of certain people who made living with a positive attitude too difficult. The biggest one for me was being okay with asking for help. Actually, the Donna of before CFS and the Donna of CFS is quite a different person...a better, more grateful person. Many lessons have been learned. I'm more compassionate, less judgmental; I've learned to appreciate that the simple joys of life are the important ones. I see the beauty that surrounds me in my slower pace. I appreciate those who love and support me much more than before.

Reply
martha
6/13/2015 01:07:37 am

Donna, I loved the way your comment started at a low point then rose and rose and rose. You seem more present and compassionate because of SEID/CFS. Not that any of us would recommend the experience! Thanks

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    Hello,  I'm
    Martha Kilcoyne

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     to our Community!

    After struggling with CFS for four years I am fortunate now to be fully well and making choices about how I want to live my healthy life.  One choice is to be an active part of the CFS community and to offer one voice from the fully recoverd to the dialogue.  I'm glad you're here!   For more about me, here's my Bio.

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